New bloods - I am SO confused!: Hi All, So I had... - Thyroid UK

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New bloods - I am SO confused!

Zuzka1 profile image
11 Replies

Hi All,

So I had my bloods done today. Im SO confused.

5 weeks ago I came off just Levo and started combined treatment of Euthral (100mg levo and 20mg T3) I am in France btw.

Anyway - Ive felt NO difference at all. In fact I feel rubbish. Heres why in my results but how the hell can taking T3 make me have less T3 than my last bloods. I just want to cry! My T4 is down too. ARGHHHHHHHHHHHHHHHHHHHHH

TSH - 0.099 range (0.400 - 3.100) last bloods - 0.254

T4 libre - 10.5 range (9.0- 19.0) last bloods - 14.4

T3 libre - 3.1 range (2.6-5.7) last bloods - 3.7

Please can someone help/tell me whats going on. I despair.

Thank you as always.

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Zuzka1
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SeasideSusie profile image
SeasideSusieRemembering

Maybe you're not on enough Euthyral.

I used to take 175mcg Levo and was unwell (found out I had high rT3 along with low nutrients). I now take Levo plus T3 (currently 100/31.25) which, if you work out the T4 equivalent, is more.

Zuzka1 profile image
Zuzka1 in reply to SeasideSusie

Thanx SeasideSusie

I was on 175 of Levo 5 weeks ago and got changed to this....

I see my endo in a week and she did say she was putting me on the combined drug to then see what levels I need of each but think panics me now....

Is it going to take months and months to get me on the right levels of T3 coz 10 months of going up in Levo with no change did me in and now I have to do that all again 😢😢

I hate being this fat. And this tired x

SeasideSusie profile image
SeasideSusieRemembering in reply to Zuzka1

Hopefully you'll get an increase next week, then make sure you are retested 6 weeks later, another increase if necessary, and so on until you feel better. Resist your endo dosing by TSH alone, it's FT3 that's important. My TSH is always suppressed, as much as <0.005 but last time 0.01, yet my FT3 is in range (near the top) but I don't involve my GP.

Zuzka1 profile image
Zuzka1 in reply to SeasideSusie

I'm sure she will up my side but my question is does each increase have to be as long winded as when u up in Levo? As in how much can she increase me each time??

SeasideSusie profile image
SeasideSusieRemembering in reply to Zuzka1

I imagine it does. What doses does Euthyrol come in?

If just one tablet size of 100 T4/20 T3 then it's very unlikely that you'd have your dose doubled. After all, if on Levo only, that wouldn't be increased from 100 to 200mcg in one go, nor would T3 be increased from 20 to 40mcg. Dose increases need to be gradual as it takes 6-8 weeks for the full effect of T4 to be felt.

Zuzka1 profile image
Zuzka1 in reply to SeasideSusie

Yeah it s one tablet...

Should I up it by a 1/4 this week? To get going?

SeasideSusie profile image
SeasideSusieRemembering in reply to Zuzka1

If your doctor is OK with you increasing your dose yourself, then a quarter of a tablet is about right. Give it another 6-8 weeks then retest to see how much difference it has made.

Zuzka1 profile image
Zuzka1 in reply to SeasideSusie

Basically is this going to take months and months and months ??

SeasideSusie profile image
SeasideSusieRemembering in reply to Zuzka1

Who knows, it takes as long as it takes to reach your optimal dose. You can't rush increasing hormones.

shaws profile image
shawsAdministrator in reply to Zuzka1

It is trial and error unfortunately. Some have joined who've been unwell for years but with the forum we have support and encouragement along the long road and it becomes shorter and you'll feel much better with no clinical symptoms.

When becoming hypothyroid it is a long, slow process that we initially are unaware completely until we finally go to doctor. Sometimes they never do a blood test for the thyroid gland. A group of mine never did but I got medicines for the symptoms which didn't help at all. It's only now I realise that they don't know any clinical symptoms at all and it seems to be the last thing they think of - not in my case - none of them thought nor took a blood test.

Do you know that blood tests have to be at the very earliest time possible, fasting etc?

Zuzka1 profile image
Zuzka1 in reply to shaws

Yes. My bloods are always first thing. Nil by mouth.

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