Petition needs signatures : Hi everyone a... - Thyroid UK

Thyroid UK

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Petition needs signatures

Sweetart profile image
20 Replies

Hi everyone a petition has been started at Petitions.Parliament .UK it needs your signature ,it's requesting that thyroid sufferers are given a choice of treatments on the NHS. To sign go to ....

Petitions.Parliament.uk,

in the search box type in Thyroid,

and the petition should come up .

good luck

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Sweetart profile image
Sweetart
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20 Replies
Rhsana profile image
Rhsana

petition.parliament.uk/peti...

stig5882 profile image
stig5882 in reply to Rhsana

signed and shared. :)

poppppy profile image
poppppy in reply to stig5882

There is a larger petition you may want to sign to. Just that it's nearly at point where it has to be heard. Sorry to interfere but think you would want to know

Its this link to website

you.38degrees.org.uk/petiti...

Then search " thyroid "

poppppy profile image
poppppy in reply to Rhsana

That's the smaller petition. It's on website you.38degrees.org.uk/petiti...

And then search "thyroid"

SeasideSusie profile image
SeasideSusieRemembering

Sweetart

"Many sufferers report greater benefits from taking Natural dessicated thyroxine but due to cost it is not easily available on the NHS. "

That's not accurate. It's nothing to do with cost - that's T3.

The reason that NDT isn't easily available is because it's unlicensed in the UK. It might be available on a 'named patient basis' if a patient can find a doctor willing to do this but very few are.

poppppy profile image
poppppy in reply to SeasideSusie

I have signed one on 38 degrees site

lmoran1969 profile image
lmoran1969

Signed and shared FB and Twitter xx

Vikkiod profile image
Vikkiod

Is there a reason why only 500 or so people have signed this? Am I missing something? Surely this is what we all need? 100,000 signatures to get discussed in parliament? Are there other petitions active that are attempting the same thing that i'm not aware of? X

Sweetart profile image
Sweetart in reply to Vikkiod

As far as I know it was only started yesterday it doesn't seem much support though I agree.

SeasideSusie profile image
SeasideSusieRemembering in reply to Sweetart

Vikkiod Sweetart It's a non starter because, as I said, it's nothing to do with cost, the cost issue is to do with T3 which is being addressed in various ways.

"Many sufferers report greater benefits from taking Natural dessicated thyroxine ***but due to cost it is not easily available on the NHS.*** "

NDT isn't being prescribed because it's not a licensed medication in the UK, it's nothing to do with cost.

If the details are not accurate, the petition won't, or even can't​, be taken seriously. The petition is a non starter.

Does the person who started the petition even know that NDT is not a licensed medication in the UK?

Sweetart profile image
Sweetart in reply to SeasideSusie

I have sent Rachel Parker a message she uses thyroid group UK on face book,to see if she can iron out some of the details it's still circulating. Hopefully will get a reply.

Ellie-Louise profile image
Ellie-Louise

Signed and shared. (704 now)

signed and shared

ecogran profile image
ecogran

signed and shared - 767 now

MaryMary profile image
MaryMary

I'd like to sign but agree that it could be written better. Does anyone know how to find Rachel Parker to ask her to modify it?

topaz1 profile image
topaz1

Signed and shared. I got a reply from the Parliamentary Under Secretary of State for Health after complaining to my M.P. about this and the letter just gives the usual guff. It's going to take a hurricane to shift the NHS!

ValTay profile image
ValTay

Have signed, but also agree it is unfortunately not well written - brain fog, perhaps? But many thanks to Rachel for starting it.

poppppy profile image
poppppy

Signed. Will share with family tomorrow. Are we talking about the one that is 4 off target now. Didn't see the blip about ndt being costly. Is it ironed out now. I signed the one on 38 degrees site.

poppppy profile image
poppppy

Link to website is you.38degrees.org.uk/petiti... and

Then search "thyroid" and there's the petition. It's 4 off target at moment but would be great to double the score

Sweetart profile image
Sweetart

Good stuff have signed x

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