Does anyone know whether it is possible to get thyrotoxic myopathy once the thyroid gland has been removed or partially removed, after many years?
Had partial thyroidectomy in 1980 (had a 4 nodule goitre and was told post operation i had papillary carcinoadenoma). No pre op scan in those days... not even since.
Was put on thyroxine and it appears i did "fairly well" for quite a while. Also not in best of health as I then developed rheumatoid arthritis and other autoimmune problems. Am taking 100 mcg and 75 mcg T4 on alternate days.
Have become rather ill for past 2 years or so and after a long battle with my GP and thanks to the very good advice from members of the HU Forum (many thanks to all of you - you know who you are xx) I have been prescribed B12 injections since beginning of February which have made quite a difference (although not yet totally 100%). However it appears i have become hyperthyroid (probably have been for quite a while but only got tested for TSH!!!! so that would explain why my test came back as "within normal range" each time).
Did ask GP to request further test back in December 2016;
TSH: 0.85 miu/L (0.3 - 5.5)
FT4: 23.1 pmol/L (12 - 22)
FT3: 3.8 pmol/L (3.1 - 6.8)
Thyroid Peroxidase antibody: 18 ku/L ( < 34.0)
Blood was drawn at 8 am, fasting and 24 hours after taking thyroxine, only drank water.
I understand I am a poor converter. Do not understand the TPantibody: 18 ku/L and the range of < 34.0... does that indicate I am ok or does it mean I am well above the range since it says less than 34.0.... bit confusing. Perhaps Rod will know?
My GP had previously said I was euthyroid but at my last appointment when pressed agreed I was hyperthyroid.... and we 'll discuss this at my next appointment.
I am quite weary about consulting an endocrinologist as they do not seem, on the whole, to know a great deal about the complex working or lack of, of thyroid... If anyone knows of a good endocrinologist then I would appreciate if you would email me privately. Thanks for that.
Looking forward to hearing from you with your good advice and support, as always.