CFS / ATP profile test (Acumen)

[ann_g_k]

Good morning everyone.

Can I ask if anyone has had the above test with interpretation from a practitioner? I've now had two such tests and the naturopath, whom I met yesterday, was very pleased with the improvements.

He thinks that within the next few months my nutritional deficiencies and mitrochondrial dysfunction (the cause of my CFS as far as he is concerned) will have been completely reversed and I will be able to withdraw all medication.

However, having looked more closely at the two test results and compared them, it seems to me that while some show an improvement, others definitely don't. This leads me to wonder if the naturopath actually knows what he is talking about.

I've long had qualms since he said that a BP of 148/98 wasn't high and a TSH of 3.12 was low (!).

I'm considering changing practitioners, but do not know who to turn to (any recommendations?). I would like someone who would explain the test results more fully, interpret them properly and who would follow up on what is obviously a major problem (i.e. the blocking of translocator sites/function), which is getting worse, not better as I was told yesterday.

Before I explore other practitioners, I'll give the naturopath a chance to explain the difference between my understanding and his, but I doubt I will get a satisfactory response.

To be fair to him, he has actually done more for me in six months than the NHS in over 30 years as the ATP test finally identified the nutritional deficiences and mitochondrial dysfunction causing many of my problems.

This particular naturopath is known within Thyroid UK, which is why I'm being circumspect and not mentioning names, but will do so in private messages.

NB I have never had a diagnosis of hypothyroidism but have had ME of varying severity since 1989.

With thanks, Ann

[Marz]

Do you have other thyroid results ? - in addition to the TSH. FT4 - FT3 and anti-bodies also need to be tested. Your TSH is in range but higher than someone who does not have a thyroid issue. CFS is often linked with Low T3.

Ferritin - Folate - B12 - VitD - are they all optimal ?

[ann_g_k in reply to Marz]

Thanks Marz, I've just added all the info in my profile - thought I'd already done that!

[Marz in reply to ann_g_k]

Sorry forgot to check before posting ! Most people do not complete their Profiles 😎 I would keep going with the supplements .....

[shaws]

If you have improved somewhat with this person's routine/advice it might prove worthwhile. We aren't experts but mainly go down the thyroid route.

This is another doctor's regime and who has gone against the guidelines and has appeared before the GMC but she has many patients who've recovered and has a waiting list and wasn't taking new patients.

meassociation.org.uk/2011/0...

drmyhill.co.uk/wiki/Summary....

[ann_g_k in reply to shaws]

Thank you Shaws, I actually saw Dr Myhill many years ago before she collaborated with Dr McLaren-Howard and others in the ATP research and developing the ATP testing. I would have seen her, had her patient list not closed. This particular naturopath is a devotee of Dr Myhill, which is why I chose him in the first place.

[shaws in reply to ann_g_k]

I do hope he is successful in eliminating your symptoms.

It's like looking for a needle in a haystack when we have continuing symptoms which aren't relieved. There are so few doctors nowadays who treat the whole person as the others only refer to our TSH and we are left high and dry at times.

Also it would appear that whatever we have it is a gradual effect and if we are, finally, diagnosed we don't always have a speedy recovery.