I'm new to trying to manage my thyroid levels and it does not appear to be going well for me. I am one to always follow (doctors) instructions but feel my GP is not hearing me and giving blanket advice rather than advice based on me/ my situation. I don't want to ignore professional advice but am also losing faith in my Dr.
I am 33yo and have struggled with weight for the last few years (gaining/ struggling to maintain despite regular exercise and attention to nutrition). During Dec/Jan holidays I was very flat but put this down to recovering from a tough year. Early Jan my thyroid levels were tested as part of pre-pregnancy planning. My levels came back hyper- (refered to endo in 1 month) and throughout Jan symptoms continued to worsen, retested T3 & T4 further elevated. Ultrasound showed some nodules, FNA on one with micro calcification came back clear for cancer. During Feb I felt noticeably better and asked to be retested - levels in normal range. By the time I seen the endo I was feeling things change again and further blood tests came back hypo-. I was then prescribed 100mcg levothyroxine - taking first thing each morning 30/60 min prior to food.
Since starting the medication I have been exhausted during the day, mentally foggy, lacked concentration and struggled getting to sleep at night (despite being tired). The disruption to my sleep (getting to and waking up later) has further disrupted my other daily routines (include eating) and the lack of sleep (and other symptoms) is making difficult to function normally at work and life in general. My most recent thyroid tests (TSH/T3/T4) are all in the normal range.
As I was feeling much worse after starting thyroxine I requested my adrenals be tested. Completed a short Synacthen test and tested 'normal' - but I was taking oral contraceptives at the time (However have since read it is recommended these stop 6 weeks before the test). My Dr says this wouldn't matter- does anyone know how bigger impact they can have on the result?
My Dr has also said that the fatigue and trouble sleeping have nothing to do with my thyroid/ medication and because of the short synacthen test results I am not physically fatigued.
She has said my main focus should be on loosing weight by stopping excerise (l have already reduced the intensity of my training but tried to keep some regularity - light Bootcamp 3 times per week, PT once a week and boxing once a week) and eating less (she has suggested skipping meals). I am worried about doing this and am far more concerned about being able to function correctly than loosing a couple of kg (At 167cm and approx 80kg I know my BMI is in the overweight range but I am generally fit. I am carrying extra weight but am also fairly muscular). I know the advantages of being a healthy weight but feel that I might keep struggling with this until I get my thyroid/metabolism right as I eat healthy anyway - Dr's advice eat healthy but less of it, she has made this recommendation without asking/considering my daily calorie intake/deficit.
Do these recommendations sound normal?
I had enquired about trying my medication at night instead of AM - my Dr wasn't keen on this but then said she didn't care if I took it AM or PM. She also suggested that I halve my dose. I am not keen to change too many things at once so am considering keeping the same dose and changing the timing first and if that doesn't help then changing the dose.