Hi All! I have had RI treatment so no active thyroid at all. My TSH is always 0 and I have fought to get T3 as well as T4 because historically, only on Thyroxine, I still felt dreadful with Brain-Fog, tiredness and general malaise.
I am currently on 25mcg T3 & 75 mcg T4 which I was happy with until recently. Things have now changed - I am constantly overheating, whereas before upping my meds I was permanently cold. I have also developed a slight goitre which they aren't bothered about, but now my eyes are beginning to be very troublesome - slightly puffy and potentially 'bulgy'!
Just seen my GP who again says I should be lowering my medication, both for my heart as it is probably a strain on it and now for my eyes. Apparently if they are affected they can be irreversibly damaged. He's given me some new drops to try, but feels unless I start lowering my medication, I will go downhill. And that it really is for me to consider. Quote "Since my TSH is not readable my body is obviously starting to fail because this level is telling me so."
I have got an 'arrangement' with my consultant that he has 'told me I am over medicated' but accepts that I 'feel better' at this level, on the understanding that I can continue as I am if I must, but that it is against his preferred advised treatment. I think maybe I should hear what they say, if I am now starting to get unwelcome side effects but need to work out which I should lower - or maybe both? I have tried before to lower the dose, and dropped 5mcg of T3 but felt bad. So went back up again?
Any thoughts most appreciated!
My Free T4 (9.6 ) to my mind is actually quite LOW in the scheme of things.
They did not do ny T3 reading.
My 'Serum C reactive Protein Level (XaINL) is 4.6 mg/L (0.0-5.00) seems on the high side too.
I note that Mean Cell Haemoglobin level (XE2pb) says 'Below Range' at 27.4 pg (28.0-34.0) but although this is stated, it doesn't say - requires attention?
I am 62 year old female, past menopause and not taking anything other than the above!