Hi everyone
Not been around for a while, l am very unwell at the moment.
I have tried many combinations of various things but still l am very ill.
I had a fallout with my doctor, over taking T3 and doing some blood tests to see why l was feeling so lousy. So l managed to register with the doctor who diagnosed me with my thyroid problem 20 years ago. I was over the moon l had managed to track her down, and to her credit, she has tested me for everything possible with no anomalies in my blood tests. The only 2 things were... l was showing a marker for irritation which has shown in blood tests before, and my T3 levels which she was very concerned about. So much so she sent me to an endo. He wanted me off the T3, saying it wasn't a drug which most specialists prescribed, because of the risk of heart and bone problems. I said l had been on it for over 15 years with no adverse effects, having been put on it by Dr Skinner. Not a fan of Dr Skinner. So at his suggestion, to try to wake up the TSH, l have weaned myself off T3 for the last 3 months. Now that l have none in my system l feel like l am dying! Awful fatigue, lump in throat, indigestion, IBS, constant headache, bones and muscles aching badly, tinnitus...you name it l have it.
I have blood tests on Monday at my doctors, they will be sent to the hospital, so l have the results when l see the endo the week after.
I am hoping l am not on the merry-go-round again of being back where l started all those years ago.
I don'the have up to date bloods for a couple of weeks, my previous results are here somewhere, l have no energy to find them.
I am taking 150 mcg Thyroxine and was taking 40 mcg of Levothyronine.
I feel so I'll, l can't see an end to it. I have a feeling l have made a big mistake coming off the T3 completely. I am trying everything, l am just so desperate to feel well.
Any input would be great. I appreciate the help l have had from you all in the past.
Sophie xxx