Do I need to see an endo? Also can anyone make ... - Thyroid UK

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Do I need to see an endo? Also can anyone make sense of my results?

Bpthyroid profile image
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Hello!

I'm going to add a photo of all my results to you guys in here, I don't have much of an understanding of it all. My GP won't test for my t3 levels only for tsh and sometimes T4. I'm hoping to see a private endocrinologist. Do you think this is necessary with my results?

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Bpthyroid
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Bpthyroid

Not too sure if you can see my results clearly

I'm currently back on 100mg

18th Jan 17 tsh 0.38 no T4 results given, put back up to 100mg

30th Nov 16 tsh 0.05 T4 16.3 on 1 day doctor put my levothyroxine down to 75mg as the doctor said 100mg was too much for me to take

7th September 16 T4 17.1 tsh 0.05 still takin 100mg

17th may 16 T4 18.4 tsh 0.05 Ferritin 27 on 100mg

3rd Nov 15 T4 3.3 tsh 150.0 this was when I was first diagnosed and I got put on 100mg levothyroxine

I have definitely had a lot more blood tests than this but the doctor gave me this list saying these are the only ones I've had which isn't true I've had blood test pretty much every 2 months since diagnosis as I haven't felt 100% since before having my baby, I developed hypothyroidism during pregnancy.

You are gong to find it very difficult to get well if you see a doctor who tries to medicate you acccording to TSH. Thre was no reason to reduce your levo to 75 as yoru FT4 has actually dropped, so you probably needed an increase, not a decrease. Can you see a different doctor? It might help to take your doctor a copy of Dr Toft article explaining that some peopel need suppressed TSH in and slightly over range FT4 in order to feel well. You can get it by emailing louise.roberts@@thyroiduk.org.uk. You can get private tests from Blue Horizon or Medichecks.

Bpthyroid profile image
Bpthyroid in reply to Angel_of_the_North

Thank you so much for your reply well I have seen 3 doctors now within the same surgery and each one had said the same thing, the last doctor I spoke to finally said she will write me up a referral to go to an endo privately (she said it wasn't necessary though as the treatment I'm getting is fine) so I will hopefully get that referral letter next week and find a private endo and see what they think. And I think it's probably best if I move GPS as they all the ones I see on my GP think the same.

You're reply has made me feel abit more sane thank you

Bpthyroid profile image
Bpthyroid in reply to Angel_of_the_North

Also I will definitely check out that article thanks

Angel_of_the_North profile image
Angel_of_the_North in reply to Bpthyroid

Louise also has the TUK list of more sympathetic endos, which you might find useful.

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