Hi everyone. I am new to this forum but I imagine like many people I am searching for some reassurance and some answers so any help would be very much appreciated. I will aim to keep my thyroid history as brief as possible.
I have been Hypothyroid since 1980. Although I had all the symptoms for at least 8 years prior to this but despite having a family history of thyroid disease and symptoms TSH tests were within normal range, finally I collapsed abroad and was asked how long I had had the tumour in my neck for (something I new nothing about)! I was then prescribed Levothyroxine but symptoms persisted. Approx. 4/5years ago I started taking Liothyronine this was certainly an improvement, Then a six months ago I managed to take a double dose by mistake. I went straight to the GP who said that my test results were so low that it had not made any difference as I had no symptoms. We agreed I could increase my Levothyroxine from 50mcg to 75mcg and continue with the 20mcg T3. My life was transformed I felt myself again, my husband could see the difference and I started to live again.
Recently my GP retired and my new GP said she had received a circular from the local CCG advising her not to prescribe T3 and she refered me to a local endocrinologist. He has said that I must come off T3 immediatley as there is a risk of stroke and osteoperosis. I asked if I would gain weight and he said yes probably a stone or stone and a half. I told him this would make me obese and at risk of heart attack and joint problems. The endo then said that he considered the risk of a stroke to be greater than the risk of heart attack. I was advised to come of the medication immediately and that he was unlikely to be able to bring me back to full health and I would probably have to live with a degree of ill health. I have tried but the symptoms are terrible. I had previously told my husband that I would rather live for 10 years as I am than 30 years as was before. Since then I have not been sleeping as I am so worried.
I am sorry to have taken so much of your time and I do appreciate your reading my post but finally my questions (test results below);
I have decided to try and get 2nd opinion and would like to remain on T3 please can anyone advise me if they think this is safe?
Also how can I source T3 for myself as in 2 weeks I will not have any tablets left?
Can anyone recommend a good endo who may be sympathetic to T3 please?
My recent GP test results (unfortunatley I do not have the lab ranges);
25th September 2015
FT3 5,8 (
2.30pm Non fasting