BBC Trust me I'm a Doctor: Thank you Dr Michael... - Thyroid UK

Thyroid UK

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BBC Trust me I'm a Doctor

Spareribs profile image
41 Replies

Thank you Dr Michael Mosely... that was refreshing if a tad brief...

Took a few snapshots...

- Where is he researching - Right Here!

- T3 - Exists as an alternative for those unable to convert T4 to T3 (now expensive)_

- Animal products NDT - is there too, although "unlicensed" (YAY at last!)

- And who's looking at the TUK "Getting a diagnosis" page? (clue - eyebrows)

So... Get TSH AND T4 tested

GPs interpretation of tests are "too ridged" (Dr Toft - The Queen's physician btw)

More debate needed .... you bet

healthunlocked.com/thyroidu...

bbc.co.uk/iplayer/episode/b...

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Spareribs profile image
Spareribs
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41 Replies
RedApple profile image
RedAppleAdministrator

And thank you Jo Parker ;)

Why the capsules instead of tablets though?

humanbean profile image
humanbean in reply toRedApple

Judging by the graphics I've seen the program use over the last few weeks they use empty capsules by the thousand. You can buy them in pretty colours too.

I could buy 200 for less than a fiver if I needed to :

amazon.co.uk/Alchemists-Apo...

amazon.co.uk/Alchemists-Apo...

RedApple profile image
RedAppleAdministrator in reply tohumanbean

Yes I know, but they could at least have shown the blister pack for the levo!

humanbean profile image
humanbean in reply toRedApple

Yes, agreed. :)

spongecat profile image
spongecat in reply toRedApple

I definitely spotted a slow pan across a packet of Levo 100mcg!

helvella profile image
helvellaAdministrator

Oddities:

Is Tiromel in capsules as in the picture?

Is it appropriate to talk about desiccated thyroid as a cheaper alternative to liothyronine? (Horses for courses - right medicine for the patient, surely?)

Why didn't he get a thyroid profile done?

Laboured point about metabolism viewed purely as "how fast/how hot" and utterly ignored things like gene transcription which might be more important in some ways.

helvella profile image
helvellaAdministrator in reply tohelvella

Also failed to acknowledge that desiccated thyroid was the only treatment for around half the time since Murray's original sheep thyroid injection paper/talk.

Evidence to change everyone to levothyroxine monotherapy could be argued to be lacking.

humanbean profile image
humanbean in reply tohelvella

I sometimes wonder if some enzyme reactions need body temperature to be very close to normal to work properly. Considering that some people say they have temperatures barely above hypothermia, I'm sure it is a very relevant factor.

I've also read posts that say it's quite common for doctors to dismiss body temperature as irrelevant, and some seem to believe the patient is lying.

helvella profile image
helvellaAdministrator in reply tohumanbean

I certainly agree with that.

in reply tohumanbean

I had two blisters on my feet from my hot water bottle through socks and a bottle fleece cover!

Spareribs profile image
Spareribs

I don't care & have no spare time for anomalies & split-ends ...

BBC verification is good enough for me - if only for 5 minutes - don't you realise how far we have come on this journey? x

lynmynott profile image
lynmynottPartnerThyroid UK in reply toSpareribs

I agree Spareribs, This is the furthest we have ever got in a TV programme and the furthest Dr Toft has ever spoken on camera.

Spareribs profile image
Spareribs in reply tolynmynott

I know you can do fireworks emojis, I've seen it.... drat it!

I'm not here enough Lyn, I'm sorry for that - but by standing a bit back, you realise things are changing - it's obvious - and that's thanks to you sweetie (& Lou & all the volunteers) xxx :D

lynmynott profile image
lynmynottPartnerThyroid UK in reply toSpareribs

Thanks! It's difficult sometimes to see the subtle changes. I think that once a respected programme like this starts to look into it, others will too. I'm hoping researchers will have seen the programme or know some of the docs and think about more research. 😄 xx

Spareribs profile image
Spareribs in reply tolynmynott

Well - it's out there, I've no idea how much Dr Mosely is respected by his peers, but personally I like his style, always questioning.... & the tapeworm - respect...

If GPs had time to watch TV maybe... (or catch-up like me) nevertheless it means that our members can have the gall to ASK .... "Oh Did you see that "Trust me I'm a doctor" programme about Thyroid? ....

It's all about the start, of a conversation ..... the ending is up to you! x

RedApple profile image
RedAppleAdministrator in reply toSpareribs

How many rungs of the ladder to go now then?

Spareribs profile image
Spareribs in reply toRedApple

lots, probably & many trolls along the way.... how's yourhead for heights? RA Mine is awful now :) but i'll have a go...

Redjane profile image
Redjane in reply toSpareribs

You took the words out of my mouth spare ribs. After all it was an item within a programme and I for one was thrilled to hear it being told in a clear and concise manner and basically what I have had to find out myself with the help of this brilliant website.

pippan profile image
pippan

T3 pennies to produce but £300.00 for a two months supply pfft.

spongecat profile image
spongecat

Fantastic to hear them talking about (a) overcooked levels before treatment started (b) the fact that some cannot convert T4 to T3 and (c) the dreadful price gouging of liothyronine by a pharm company........Dr Toft said it.."pennies to make"!

malancy profile image
malancy

Oh dear, I fell asleep during the programme and missed it., I'll have to watch on catch up.

Spareribs profile image
Spareribs in reply tomalancy

see the bbc iplayer link above - it's about 20 minutes in & don't blink! :D

in reply tomalancy

Me and my sis too!

Treepie profile image
Treepie

Did I miss any reference to the topic at the start of the programme! I suppose it was much better than nothing when it arrived but too little too fast.

mrsm49 profile image
mrsm49

It's great news, not one but two respected doctors discussing t4/t3 and on the BBC too not some obscure channel! I know it was brief but hopefully this is the start of real change :-)

Redjane profile image
Redjane

I noted that they mentioned that T3 was expensive in UK in spite of it being produced for pennies by the manufacturer but the didn't mention that you can buy it in Europe very cheaply. No one ever says why dies the NHS always have to pay through the nose for everything. However it was good that the subject of poor treatment and suffering of patients with thyroidism was raised again.

Cardiff-Cate profile image
Cardiff-Cate in reply toRedjane

Can you recommend a reputable brand and somewhere to buy it online?

Redjane profile image
Redjane in reply toCardiff-Cate

I will pm you if I can remember how to do it!

Hillwoman profile image
Hillwoman

Where did the 10% figure of people who don't well on levo come from? I think the usual proportion quoted is 20%, though I would query the accuracy even of that figure.

Kiwidel profile image
Kiwidel

I can't watch this as I'm not in the UK, but there was also a story on the BBC website that also appeared in their Facebook news feed.

It was getting lots of reaction last time I looked and the Thyroid UK website address as well as this forum were suggested to a number of people who were wanting to know more by both me and others.

Spareribs profile image
Spareribs in reply toKiwidel

yes over 1k comments and 3200+ shares

facebook.com/BBCLifestyleHe...

Josiesmum profile image
Josiesmum

Looking at that image, it looks like Numberone1 may have made it onto the telly. :-)

healthunlocked.com/thyroidu...

Numberone1 profile image
Numberone1 in reply toJosiesmum

Wow, Im famous!

Numberone1 profile image
Numberone1 in reply toNumberone1

Do you think the CCG and my GP saw it?

Spareribs profile image
Spareribs in reply toNumberone1

send them the screen-shot! :D

AiryFairie profile image
AiryFairie

Hidden I saw an Endo last month who, instead of just upping the Levothyroxine, was happy to prescribe Erfa Thyroid! (Only when I was cheeky enough to bring it into the conversation though - but still!)

Good luck with getting the GP to prescribe it - I think mine would have a fit of the vapours if I asked him for it!

AiryFairie profile image
AiryFairie

That's what I have been wondering, Hidden .

Josiesmum profile image
Josiesmum

I take my hat off to Michael Moseley for bringing the whole T3 situation to public attention.

Next I'd really like him to make thyroid patients aware that giving up gluten can reduce their antibodies, it's shocking they're not being given this information by the NHS.

Equi-crazy profile image
Equi-crazy

They are asking people to comment via Facebook. bbc.co.uk/news/health-38895877

Add you voice to the cause for those who haven't commented!

helvella profile image
helvellaAdministrator in reply toEqui-crazy

The BBC should provide their own comment facility - I am not going to join Facebook just to read/view/comment on this, or any other, story.

Spareribs profile image
Spareribs

9 months on & NHS over-charged for T3 is in the news again... (6000% over 10 years)

bbc.co.uk/news/business-420...

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