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Thyroid UK
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very upset and confused

OK hopefully you guys will understand me

I went to the doctors today

since having this thyroid problem 3 years now I put on alot of weight. but my tests are saying should be skinny the blood results said that they will not put me on t3 that's for people who put on weight but mine is the reverse and cannot understand why the weight gain weakness in legs and arms joint pains in shouder

etc forgetfulness just feel week. now I got to pee in this large container for 24 hours more blood tests and another scan now they are thinking of taking the whole thyroid out now where before they where only going to take 1/3 of it

so my body is swollen can anyone give me some advice

do you think once I have had this thyroid taken out I will lose the weight a day become normal again and I am finding it hard :(

6 Replies

I have re-read your post and see that they are considering removing your thyroid gland, so it would seem you are hyperactive.

I am hypothyroid and others who have had hyperthyroidism will respond.

I can understand you being confused as, usually, with hypothyroidism you gain weight (I didn't and remained the same), so I assume that sometimes a hyperactive person may also have unusual symptoms.

Also swelling of parts of the body would usually be due to hypo-thyroidism and that's why they are going to do a 24 hours blood test.

I am sorry and your mind must be swirling around as you've not yet been told exactly what's going on with your body.

Don't worry too much about your weight yet and when properly diagnosed and given appropriate medication, you can then sort out your symptoms which you find very distressing, as do lots of members regarding weight.

Get a print-out from the doctor with the ranges and post on a new question. Blood tests can help members to respond.

Blood tests should be done as early as possible and fasting, as that's when the TSH is highest and more likely to give you a more accurate result.



Perhaps ask your doctors to write down what they are testing you for and

why, as well as your blood test and urine sample results. People can give you more accurate feedback from this information,

My friend had RAI treatment for Graves disease, the autoimmune form of hyperthyroidism. It took a long time to diagnose what was wrong. She put on a lot of weight for several years, before treatment, but also had bouts of being very thin when it was in remission. The medics refused to operate, saying radiation treatment is safer, but she's been more ill since then, & is now hypothyroid & undermedicated on T4. She's also developed prnicious anaemia, & is under investigation for other autoimmune & hormone issues.

Several people have said going gluten free helps with autoimmune issues, as well as being careful to either avoid or eat certain foods.


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...sounds like almost the same story as mine, so many people :/


I agree with the other posters. Before you go under the knife, make sure it's really needed, and you're not solving the wrong problem.

How are your adrenals and pituitary? Have they checked out all the autoimmune diseases? Do you have some sort of infection or a reaction to something, or toxicity? Cancer?

Get good answers, investigate for yourself, and keep records so you can refer back to them as things progress.

I also agree that diet can be a factor. Food allergies and nutrient deficiencies can wreak havoc with your health. An autoimmune Paleo diet might be worthwhile in getting your health back.

Good luck!


Having suffered most of my life due to total Thyroidectomy , I would never advocate it! The problem is that removal means you will be on medication for the rest of your life. Looking back I wish I had gone to a homoeopathic doctor to right my health and find out why thyroid gone wrong. Contact British homoeopathic society and do your best to research thyroid and, most of all, what is it that ails you? How and why did thyroid go like this. And only go for surgery as an absolutely Iasr resort, is my advice. However, it is your choice. Warmest wishes to you, Thyrigia


Can you tell us what your thyroid problem actually is and what medication you've been given and at what dose, please.

Are you hypothyroid or hyperthyroid i.e. is your thyroid underactive or overactive? Do you have thyroid antibodies of any kind?

There are so many possibilities of what might be going wrong based on your description of weight gain, weakness, and forgetfulness. We really need more information to work with. :)

Please ask at your surgery for copies of all blood tests you've had done since before you were diagnosed.

First of all, ask if you can access blood test results online. Take proof of identity with you. You will need a passport or picture driving license. Then you need to register online with the information you are given.

If online access isn't available from your surgery then ask for paper copies of your test results. You must ask for the numbers and the reference ranges. You don't want a sheet of paper that says "normal" next to every test.

One you have your blood test results you should type them into a new post on here and ask for feedback.

You might have low vitamins and minerals and they can cause lots of symptoms just on their own. So posting those results would be helpful too.

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