Touching Video from STTM

[shaws]

Click on first video toward the bottom of the right-hand of the page

stopthethyroidmadness.com/d...

[Sporty-mi]

Yes very sad x

[Rapunzel]

shaws you are made of finer stuff

I didn't feel touched. I felt fecking angry to think that even in the seat of the free world where STTM was founded that this video will find resonance with so many. You've answered another thread today about the few good doctors being hounded by the establishment until they gave way ( one way or another ) under the combined weight of 'the experts' who tell us, 'you are normal'.

I'm not touched. Well, only if wanting an Uzi9mm to mow down a few hundred useless endos counts as being touched. Suppose it does. Ask me if I care

[shaws Administrator in reply to Rapunzel]

I think most on this forum are outraged. I am still ,even though I was finally diagnosed about 8 years ago. They have no idea how desperately unwell people feel (I should think quite a few are diagnosed as mentally ill instead of hypo). When you are finally diagnosed you are so relieved that there is a 'name' to your distress but when you then find out a short while later that you feel far worse than before being diagnosed. It just doesn't make any sense at all.

Thanks to TUK. and now this forum. so many can learn from you and others how they turned the corner. There can be some light on the journey

[Rapunzel]

'There can be some light on the journey '

You be the light, shaws. I'm deffo the dark today. If I don't get my books ( 2014-15 business year) to my accountant tomorrow, I've no doubt he'll give me the sack. I want to go to sleep and can see me working half the night, cooking the books Every blessed year I say I'll do better next year...

Here is the nightly light ( says shaws ) Rejoice with Rapunzel as she manages to do (some) work although hypo and having a mare...

[shaws Administrator in reply to Rapunzel]

I am really sorry you are having such a struggle Rapunzel. Easy for me now I'm retired and if you have brain fog or exhausted, it must need a superhuman effort to have your books ready for tomorrow.

Have you tried every concoction? (by that I mean thyroid hormones )

[loueldhen]

Me too (books/accountant) reading this instead. Tee hee. Procrastinator supreme. Good luck with yours.

[Rapunzel]

Oh the relief when it's done. This is worse than the dog eating my homework. At least he can't write to my parents...

Forge on, loueldhen Maybe we can get a doctor's note ? HMRC don't pay attention to them, tho

shaws I was over the limit with my T3 and must must must have another blood test to check how things are since I reduced my dose a bit. It's the early morning and leaving the house for the blood draw without a double espresso I can't bear it

Calculator in hand. Pressing disable on my internet or I'll be up all night. Sleep well thyroidies xx

[shaws Administrator in reply to Rapunzel]

Why is it that Dr Skinner, Dr Peatfield and others could treat patients without blood tests and know by looking at the patient and taking the symptoms into consideration and giving them NDT. That's all there was at the time. Poor Dr Peatfield hounded because he treated as he was taught and Dr Skinnerfighting a one-man battle with the BTA - no wonder he died of a stroke.

No brave doctor yet to fill their shoes and have very grateful patients.

[Musicmonkey]

I think (hope) things are changing. Even though very,very slowly. More research that helps to understand the thyroid is coming out all the time.

Even research not directly related to the thyroid may help as for example e.g. the link suggested between Psychosis and an auto-immune condition.

Also, when the exorbitant prices for T3 are no longer possible, this in itself should help.

Just so very hard in the meantime for everyone suffering.

[shaws Administrator in reply to Musicmonkey]

It would be good if there were some enlighted professionals at the top of the Endocrinology Tree but unfortunately they still do not seem to believe that T3 has been a godsend for many patients and insist on levothyroxine alone, a prohormone which has to be converted. Thankfully this works for some but not all hypothyroid patients.

Also the fact that the TSH has to reach 10 before being treated is so out of date I believe and they should be more in line with other countries who prescribe much sooner taking symptoms into consideration.

No-one in the UK seems to understand that we can have very disabling symptoms but are given 'other' prescriptions for the symptoms when the need is for correct thyroid hormone replacements.

Also they appear not to be up-to-date with research and don't mind that patients have difficulty recovering when not on the correct thyroid hormones for them as individuals. It's not a one-size-fits-all with replacements.

Neither do they believe that NDT which used to be available for patients (before levothyroxine was introduced) in the UK and they even believe in the False Statements which have been made about it. The False Statements haven't been made by patients who have now to source it themselves.

[silverfox7]

Well it's a double problem at the moment. If we find someone saying we can benefit from T3 the NHS can't always provide

[Musicmonkey]

Totally agree the system is absolutely dire right now, but I am ever the optimist!