Facebook STTM/FTPO Groups - Avoid !!!!!

Just because I asked lots of questions (as you do) like everyone else on there, I got moaned at for doing so, and they have, without warning, removed me from all the Groups, and one particular "british" Admin (who befriended me because of how poorly I am and she was where I am today) also blocked me. She said she wasnt going anywhere and would help me through things because i live alone. She then mails me on behalf if other admins and then "poof" i am gone from all grps and she blocks me from messaging her.

What an evil thing to do to someone who is ill, housebound and needs groups because it's their only lifeline. It's like pulling the plug from a life support machine.

I also questioned a couple of their protocols and they didnt take kindly to that at all. They said if i didnt follow their protocol for each area i needed help with, i wouldnt get well!! I posted in every subsection of their grps as i was supposed to as i have lots of questions on different aspects. Unfortunately i duplicated a couple of posts due to brain fog, they shot me down on that despite my apologising. They didnt like me commenting on other people's posts. I felt spoken down to on several occasions by most of the admins. Seems you cant have an opinion on their page! I used to be an admin myself on a FB group so i know its difficult but i never went power crazy with it, like some of them do on there.

If their protocols work for everyone, why are there so many members posting on there daily struggling!!!!!

Just proves how much they really care doesn't it.

Still, I was warned about them and should have listened

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47 Replies

  • You're probably better off without them.

  • what an effing evil thing to do to someone who is ill

  • Par for the course.

  • greygoose - Who are they? What's the actual name of the group? I'd like to see what they're up to just to be informed. Thanks!

  • Stop The Thyroid Madness!

    Actually, most people rave about them, but it pays to be synical at times.

  • Oh..I remember you guys posting stuff about that site! Thanks, Greygoose for the quick response!

  • That is awful Jefner,

    I'm annoyed for you, nobody needs that treatment.

    Life is hard enough but more so when one is ill.

    Stick with this forum, it's the only one that I have ever joined and the help from members has been invaluable to my wellbeing.

    Onwards and upwards J

    J 🍀

  • Jose651

    Really really spiteful considering they know i have been suicidal

  • Jefner, I know that you are angry, sad disappointed and let down by the very people you trusted with your indepth feelings.

    In time, when you recover from this experience, you will come to a realization that a lot of people just do not care enough about the impact of their words or actions.

    You have so many caring members on here who know exactly what is going on in your life on a week to week basis.

    Cherish them Jefner, and please don't waste your precious time on people who treat you, or other ill people so disgustingly.

    Kind thoughts and hugs tonight(((J))

    J x🍀

  • Thank u honey

  • Sorry to hear that Jefner. I thought the same about a certain fb group (not thyroid but adjacent) where, despite the convo being about medication (so what you'd assume might be science-based), the admin seemed very focussed on positive thinking, so if someone asked a question like 'how can I make this work better for me' or 'how long does it take this side effect to go' she'd be on you like a tonne of bricks about how important it was to only discuss positive things and she couldn't help you unless you were ready to help yourself etc. I was utterly disgusted watching vulnerable people being scolded like children. Some folk treat these groups like their own personal fiefdom.

  • Puncturedbicycle

    Thats how i was treated on sttm. If it wasnt their way, its take the highway

  • To be fair, they're pretty dogmatic on their own website so I'd expect nothing less! God I do hate that way of thinking though. If everyone's recovery is so fragile it can be easily upended by one person asking a question or presenting a different view, well I don't really want that. I choose a more robust recovery that stands up to scrutiny.

  • hippocampal was that for me? The clue is three letters. That person made smoke come out of my ears.

    Sometimes these people haven't been put forward as admin but actually start their own groups so they can be the resident expert. :-)

  • Ironically I believe the word 'endorphins' was in the name of the group.

  • Ok, I went back to look and maybe I'm getting it mixed up w a v similar group. I'll pm you.

  • hippocampal

    can you pm me the name of the group please so I can avoid

  • No. I have no issues w PAS. It is a fb group.

  • puncturedbicycle

    could you pm me the name of the group please so I know to avoid

  • It isn't anything to do w thyroid, it's fb. I wouldn't worry about it. Idk if the same person is even there.

  • Hippocampal


  • access what on?

  • Can you please specify which group you're referring to, because not all of them are like that, and it would be a shame to wrongly trash a helpful group.

    Are you referring to one of the Yahoo groups - the NTH group or one of the other groups (e.g. the adrenals or RT3 group)? I've never had issues with the NTH group, they are very nice and allow all sorts of discussion, but I've had the same experience with the other groups - I didn't get blocked but I did get moderated for asking too many questions and challenging a few things they said. The latter ones used to be associated with sttm but no longer are. Or was it a FB group?

    Sorry you had such a horrible experience!

  • Jadesilver

    Have revised my post. Facebook

  • Much appreciated! I have never been on any of the FB groups.

    Again I'm so sorry you were treated so horribly. :( They should be ashamed!! I'm glad you have this group and this great bunch of people here.

  • So sorry to hear of your horrible experience Jefner! Totally agree with what the others have said. I've only joined this forum recently but have found it to be full of very useful advice and links, plus people have been lovely. I've seen my share of Internet bullies and also experienced 'only say positive things!' with the implied 'or else!'. It is all about power and control. We should be able to question and discuss information freely in a pollite and adult way without fear of repercussions. Just my two penneth!

  • How awful to be treated like that. Don't dwell on the thoughtless actions of them though as this site is very supportive and I've been advised to post here when my NDT arrives as I won't be following sttm protocol ...

    Getting blocked for asking questions? I'm literally shaking my head in disbelief :(

  • Wishingwell

    Just been chatting with a lady in paul robinsons grp. They did the same to her without warning. Didnt like the "its our way or take the highway" approach tbh. I questioned a couple if their protocols and the admins didnt like it and warned me

  • hippocampal

    Can't report that sort of thing to the Police, just leave them to get on with it and I find somewhere else to haunt.

    Paul Robinson "recovering with t3 only"

  • Jefner: Just wanted to flag up that your post here can easily be found by searching 'sttm groups' on google - not sure if you want it to be more private, in which case I recommend making it a hidden post.

  • Jadzhia

    Not bothered hun, have nothing to hide. What they gonna do, sue me? There will be members here that will report back to them anyway

  • That's fine, just thought I'd make sure you knew! ;)

  • That is a distinct possibility.

  • Are you referring to a US group ?

  • Treepie


  • shake the dust off your sandals. It seems you have a caring group right here. Couldn't be better if you were to ask me. Welcome! :)

  • I've been treated like that on our local 'Streetlife', would you believe!

    They kept deleting my posts which were far more innocent than a lot of them were, so after I got so fed up with it that it made me leave I wrote to tell them what I thought of them. A load of boring old farts!

    Internet bullying is the worst thing on earth because you have no idea who you are dealing with.

  • Fakebook annoys the hell outa me. Deleted my account a long time ago. Stuff them if they have that attitude. Bet you are not the first, won't be the last either.

  • katiekatie

    I wouldn't mind if I had been disrespectful in any way but I hadn't. They are so hell bent on "their" protocol and won't entertain anything else. Well if it works why the hell are there hundreds of people on there every day posting that they are having problems with their protocol?????

  • I understand completely. Makes it all the more annoying when you have done nothing wrong.

  • katiekatie

    Groups like this are a lifeline for me because I live alone and spend pretty much all my days on my own

  • It makes their actions worse. There are some total power hungry people around. Not nice people at all.

  • Unfortunately, there are nasty power hungry people in all walks of life :(

    They must be well medicated to have the energy !

  • That is sooo true - love it. Many of us use all our power to get out of bed.!

  • Hi,

    I found their website too busy and confusing so I didn't bother. People on here are much nicer and more approachable. I've learnt so much on this forum in the past 3 years and all of it good.


  • I am very sorry that happened to you Jefner. I asked a perfectly reasonable question once to an analytical organic chemistry group. I was trying to understand the deiodinisation(sp) process when T4 changes to T3 and in particular what was the name of the bond which holds the forth iodine atom to the T4 molecule. I was hailed a heretic for about a week with horrible insults being thrown my way. That went on for days until a very knowledgeable person (probably a scientist with a thyroid problem!) replied with the answer - and then a number of other people found that very interesting and started a good discussion! In the meantime however, it made me feel sick and as if a knife had pierced my heart! I still do not know what made the first people so aggressive and insulting, perhaps I had highlighted their own ignorance and it was not until one of their own had endorsed my question that they joined in positively.

    I have no answer as to why people are cruel, just know it happens to many people who don't deserve it. People with thick skins "get over it", for people who are sensitive it takes a lot of time. We are on your side Jefner, try and forget it.

  • Thank you hun xx

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