Thyroid UK

NHSE VIDEO

I was browsing on Facebook and found this:

england.nhs.uk/publication/... - have people seen this before? The video of NHSE board meeting discussing the Consultation f

england.nhs.uk/publication/...

Worth a watch 52 mins in Found this on Facebook

Wow - have people seen this before? The video of NHSE board meeting discussing the Consultation findings, starting at 52mins. Sir Bruce Keough tries to summarise: "all around the NHS there are endeavours to deal with efficiency, cost effectiveness and value for taxpayers and patients.... ROUTINE prescribing - this is not a ban on medications, in medicine it is dangerous to ever say never.... L-thyroxine (T3) is an expensive version of thyroxine..." 😮😡. Someone asked 'over 2,000 of the 2,600 respondents were female, is there an issue around inequality?' BK: "Nothing there gives me concern." Then: 'Approval for recommendations for 18 items considered to be relatively ineffective, unnecessary, inappropriate or unsafe.' So at the board meeting, Liothyronine was not understood by the board, or even by Sir Bruce Keough. Give me strength. Can we ask for another consultation, like a second referendum on Brexit?!

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It was put on yesterday.

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Thank you!

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Re NHS Board AGM... As I have 'Hashi's Curse' (which includes ineffective diagnosis and treatment by useless/ignorant/arrogant Drs, I hereby curse all of them with it for eternity, so that they may have greater understanding of this life threatening condition. Thanks to current NHS diagnosis and treatment, I feel so ill that each day is a struggle. I fell again today at my residents coffee morning!

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Soory to hear life is being very unkind,Maybe you should write it all down for next NHS appointment . I hope life improves soon.

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My endo prescribed Liothyronine for me a couple of years ago as my thyroid gland has atrophied due to hashi's. To begin with i was on a combination of levo and T3 but for the past seven months I have been taking only 60mcg T3 daily and for the first time in many years I have energy and feel so much better. My endo told me that because the thyroid has atrophied I cannot turn the T4 into T3 so I do need this form to keep me alive.

A gp at the practice asked me if I had any idea how much I was costing the NHS and later a new pharmacist attached to the practice asked me the same thing. I was appalled and told both of them so. So yes I do know how much I am costing the NHS, which is a lot less then the cupboard full of tablets I used to be taking and the fact I had to take early retirement due to my symptoms.

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Well said Barb 1949

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