recent endo appointment

On 11th october i had an appointment with an endo (second opinion) who said while i still have a functioning thyroid it will remain borderline. Id always assumed borderline meant high TSH and normal T4. has anyone else heard this before? I told him about the neck pains and he dosnt think there thyroid related. I asked him as id got nodules if i should have a scan to check their growth but he again said no as after all its 'only borderline' He discharged me after one appointment so i can assume everythings fine. Ive seen the gp twice since and iam still under the mental health. Ive been offered CBT but cannot make the appointments due to having to work.

6 Replies

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  • Most people on levo need low TSH around (or even slightly below) 1 to be adequately treated. Do you have your latest blood test results.

    If they have not been done ......Suggest you ask GP to check levels of vitamin d, b12, folate and ferratin. These all need to be VERY GOOD (not just average) levels for thyroid hormones (our own or replacement ones) to work in our cells

    ALWAYS Make sure you get the actual figures from tests (including ranges - figures in brackets). You are entitled to copies of your own results. Some surgeries make nominal charge for printing out. Alternatively you can now ask for online access to your own medical records. Though not all surgeries can do this yet, or may not have blood test results available yet online.

    When you get results suggest you make a new post on here and members can offer advice on any vitamin supplements needed

    If you can not get GP to do these tests, then like many of us, you can get them done privately

    thyroiduk.org.uk/tuk/testin...

    Blue Horizon - Thyroid plus eleven tests all these. £99

    This is an easy to do fingerprick test you do at home, post back and they email results to you couple of days later.

    Usual advice on ALL thyroid tests, (home one or on NHSu) is to do early in morning, ideally before 9am. No food or drink beforehand (other than water) If you are taking Levo, then don't take it in 24 hours before (take straight after). This way your tests are always consistent, and it will show highest TSH, and as this is mainly all the medics decide dose on, best idea is to keep result as high as possible

    As you have Hashimoto's then you may find adopting 100% gluten free diet can really help reduce symptoms, and lower antibodies too. Selenium supplements can help too

    You do not need to have ANY obvious gut issues, to still have poor nutrient absorption or low stomach acid or gluten intolerance

    Best advice is to read as much as you can. Vitamin and minerals levels are very important, but standard NHS thinking, doesn't at the moment seem to recognise this. You will see, time and time again on here lots of information and advice about importance of good levels of B12, folate, ferritin and vitamin D, low stomach acid, leaky gut and gluten connection to autoimmune Hashimoto's

    hypothyroidmom.com/92-of-ha...

    Good sites to read

    Amy Myers

    The thyroid Pharmacist

    chriskresser.com/the-gluten...

  • The lastest results are TSH 1.41 andT4 16.6 the endo said there was no point in testing T3 FT3 and FT4 as he said it makes no difference so ive arranged to have these done privately.

  • He sounds like a pretty rubbish endo. No idea what he's talking about!

  • Well he is right in one way, there isn't any point having them done if they don't know how to interpret the results or aren't able to evaluate them because they don't know their subject well enough lol.

  • I hope you also included tests for both TPO & TG antibodies as well as Vitamin D, B12, folate and ferritin as well as FT3 & Ft4

  • Sadly he is also researching thyroid diseases. I put my trust in him.

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