Violent shakes and freezing cold

I was feeling good then last night a hour after dinner I shook violently and freezing cold for 2 hours before I quit I've never done that but I notoiced I've been dragging around lately I thought my thyroid meds aren't enough I only take a 50 MG and hasn't been increased in years sounds the same ish as some of you it was so bad it like a ceasure but I was coherent anyone have that really bad like that?

5 Replies

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  • Make an appointment for a blood test a.s.a.p - it must be the earliest possible and fasting (you can drink water). Allow 24 hours between your last dose of levo and the test and take it afterwards.

    Ask for a full thyroid function test, TSH, T4, T3, Free T4 and Free T3 and antibodies. GP may not do them all but tell him of your experience and the reason for a FTFT,

    50mcg is a starting dose and before the blood tests were introduced the usual dose was between 200 and 400mcg (NDT). I would surmise you need dose increased.

    If our dose is too low so will our pulse/temp. I used to get bad palps and was undiagnosed and my TSH was 100 so my heart was struggling.

    Get a print-out. If GP wont do all tests (some labs wont if TSH is in range) you might have to get a private one from a recommended lab.

    thyroiduk.org.uk/tuk/testin...

  • Did you eat anything out of the ordinary last night - I means something you don't normally eat?

  • If they have not been done ...... ask your GP to check levels of vitamin d, b12, folate and ferratin. These all need to at good (not just average) levels for thyroid hormones (our own or replacement ones) to work in our cells

    Also have you had thyroid antibodies checked? There are two sorts TPO Ab and TG Ab. (Thyroid peroxidase and thyroglobulin) Both need checking, if either, or both are high this means autoimmune thyroid - called Hashimoto's the most common cause in UK of being hypo.

    (NHS rarely checks TPO and almost never checks TG. NHS believes it is impossible to have negative TPO and raised TG. It's rare, but not impossible, there are a few members on here that have this.)

    Make sure you get the actual figures from tests (including ranges - figures in brackets). You are entitled to copies of your own results. Some surgeries make nominal charge for printing out. Alternatively you can now ask for online access to your own medical records. Though not all surgeries can do this yet, or may not have blood test results available yet online.

    When you get results suggest you make a new post on here and members can offer advice on any vitamin supplements needed

    If you can not get GP to do these tests, then like many of us, you can get them done privately

    thyroiduk.org.uk/tuk/testin...

    Blue Horizon - Thyroid plus eleven tests all these. (£99)

    This is an easy to do fingerprick test you do at home, post back and they email results to you couple of days later.

  • Hi

    I got the freezing cold feeling with the shaking one day when I was taking 50mcg. levo.

    I was left on this low dose too long and I did not know at the time that the dose should have been increased to get TSH under 1, mine was 2.65 at the time and I was left on 50mcg. for about 18 months.

    As others have said you need your bloods tested and it does sounds as though you are under medicated.

  • Iam on adrenal support . When I stop for few days, high TSH and shaking cold at night is worse.

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