I have my long awaited endo appointment on Thursday morning and am just pulling together all my prints of various results etc so that I go in armed
Last in depth bloods were my Blue Horizon ones in July and after posting the results here for advice, got an increase of levo to take me to 75mg. In addition I take 12.75mg of T3.
Still not quirtete there but certainly feeling better than i have in years. I was all set to get more BH tests with a view to slightly increasing either levo or T3, when I got the call for the endo appointment out of the blue this week so no time to get these done now.
Just wondering if someone can advise on a couple of points please?
Should I tell the endo about the T3 that I'm taking.......surely the way I'm feeling is evidence that its working for me?
Also, I have the Pulse article and am a little confused. Under point 6, in the second to last paragraph it says "While taking both hormones it is important that serum TSH is normal and not suppressed". Why is this? I've read lots on the forum about people only feeling well when their TSH is below 1 or even suppressed.
I had bloods taken a couple of weeks ago ready for my coeliac review and they did actually test just TSH which came back at 0.49 (0.35 - 5). As this isn't supressed, I'm presuming it's not a problem?
Just as an aside, in 12 years of being first hyper and now hypo, I had never had antibodies checked (until my BH test) but going through my records, I've found a letter from the endo to my GP requesting her to test these in my next blood draw. The date of that letter......Feb 18 2005.......my initial diagnosis appointment. Unbelievable, who nows had this been tested back then my subsequent years of suffering and beibg diagnosed could have ben avoided.