Following my recent blood tests (see recent post), doc requested another appt to discuss my 'borderline' result which I attended yesterday.
On arrival he questioned why I was there as thyroid tests were borderline & within range and all of my other blood results were normal. I had to point out that I was in the early process of Levo treatment, yet to get to an optimum level and feeling rubbish.
I explained that I had been working with Thyroid UK to try and fix myself, rather than taking up NHS time and funds and that despite the 'normal' results, the figures suggest deficiencies and an explanation as to why I still feel the way I do.
I said I was quite alarmed at my TPO result, 1175 (0.0-60.0) and that maybe there was a reason why they were so high and perhaps I could do something to ease / slow them down. I used Chris Kresser's 'plugging holes in a sinking boat' metaphor to try and explain what I meant and he replied that my underactive thyroid was causing the antibodies, not the other way round. I took a deep breath before my husband interrupted to tell the doc I wasn't a 'Googling Hypocondriac', he was witnessing my symptoms & behaviour and was really worried that something else is going on that isn't being looked at.
At this point I broke down, pathetic I know, but the biggest thing that has scared me out of all this was my B12 levels, 295 (211-911). I knew nothing about B12, and all the other recommended tests until I discovered this group, but it's this one that has frightened me the most. I'm a gardener and 4yrs ago I suddenly noticed that I couldn't recall plant names anymore. I knew what to do with them but couldn't recall their names. My 'sighs' are a family joke as are the number of times I've walked into walls & doors.
Over the last 3 months I have started tripping on words, saying them the wrong way round, getting the word completely wrong or not knowing the word to use. I've also forgotten the names of objects. It's only occasional, the family says they haven't noticed but I have and I don't know if they are not saying anything so as not to worry me further.
I know my husband sometimes gets exasperated at my 'rabbit in headlights' look, I feel like I'm sometimes spaced out / brain fog. I've always put my 'restless legs' and the pains in my legs, ankles down to my job but we both don't think so anymore.
I told the doc all of this and he said it was all down to my thyroid. I said that Thyroid UK & the PA recommend higher levels than my results were showing and although I wasn't asking for NHS drugs and that I was more than prepared to self-supplement, change my diet, etc... could I not be checked out just in case something is being missed that I can maybe address and fix.
He then said he'd up my Levo to 125mcg and refer me to an Endo but if I wanted to take B12 supps then that was my choice. He said my B12 result proved I was absorbing it and it wasn't affecting my thyroid. I said I wouldn't take any supps until I'd seen the Endo, in case it skewed any future tests, plus I wouldn't know if the Levo was working.
That was it, I left before he thumped me...or visa versa ☺
So I don't know if I am misunderstanding all of the guidance, explanations and associated reading links from the good folk here. Am I being paranoid?
Self doubt has crept in. I'm usually the happy one but that B12 has shaken me.
Thanks for hanging in there with this post.
PS my Vit D test result was fine, 116nmol