Yes Hashimotos. Endo last Aug declined to treat 'until it gets worse'. That really was a low point for me. It had all been getting worse for years. My T4 however had been steadily dropping. Last measure 11.1 (10-28). And T3 too...4.0 (3.0-9.5). TSH looking fab at 1.48 (0.10-4.00). So final (in my mind) trip in March to yet another GP -who lo and behold said straight off that he'd get me on 50mcg of T4 and we'd take it from there. Wow.
Long story short...he hadn't a clue what T3 was. Central hypothyroidism confused him even further. NDT not an option here. When I mentioned hypothalamus he said ''you mean hypoTHYroid" Yes, really. Anyway, in May increased my T4 to 75...felt better. Not great but better. Still unexplained crashes and feet pain and exhaustion when doing longer days at work. No weight loss. But little oedema. Yippeee!
So I got clever ...or so I thought...and ordered from Greece. Saving money. Avoiding the nonsense we have to go through every visit and the comments and the huge bills. T3 arrived. T4 confiscated as I found out today!!! Actually...I have been on T3 only since July. The packet of T4 not arriving just pushed me to do this. And I feel very very good. Very very good. 50mcg. Doc horrified. Blood test results in tomorrow though so we shall see. I only went to him last week as I knew a blood test was way overdue and I'd messed up TWO Blue Horizon draws.
Appeal? Yes but the law is the law says the letter. And ignorance is no excuse. So there! They might even have my address highlighted now and open EVERY packet! Secretion carefully in cases, handbags and on person might be the way forward if I want to continue with T3. We shall see. Sigh.
The games we have to play. The hoops we have to jump through.