NDT in the UK

[Nannacatlady]

I am seriously thinking of trying NDT. I am in the UK and is not readily available here. I'm a bit worried about the quality and am I really getting the product I'm after or is it a placeboor worse something that could make me ill. Any suggestions from UK users? Also I don't know what sort of reaction I'll get from my GP or how I go about telling her.

[Clutter]

Nannacatlady,

Don't expect your GP to approve of your intention to use an unlicensed medication bought on the internet or to have any knowledge of the brand you choose. It may be worth seeing whether you do well on NDT for a few months before telling your GP.

Thyroid-S and Thiroyd are Thai NDT. The are not regulated in the same way as American brands (Armour, NatureThroid, WP and NP) and Canadian Erfa which is why they are cheaper. They are successfully used by many members. Whichever NDT brand you decide to use buying from member recommended sources reduces the chances of unknown sites ripping you off.

You may need to try several brands over 5-6 months before you find the NDT which best suits you and you should be aware that NDT doesn't suit everyone.

[Nannacatlady in reply to Clutter]

Thank you for the information. I will have a chat with my GP about test results as suggested in the comment after this one. And I will look into the names of NDT you have given me. Thank again 😊🖒

[Clutter in reply to Nannacatlady]

Nannacatlady,

This link lists the ingredients in the different brands:

stopthethyroidmadness.com/a...

[SlowDragon Administrator]

Suggest you ask GP to check levels of vitamin d, b12, folate and ferratin. These all need to at good (not just average) levels for thyroid hormones (our own or replacement ones) to work in our cells.

Also have you had thyroid antibodies checked? There are two sorts TPO Ab and TG Ab. (Thyroid peroxidase and thyroglobulin) Both need checking, if either, or both are high this means autoimmune thyroid - called Hashimoto's, the most common cause of being hypo.

Make sure you get the actual figures from tests (including ranges - figures in brackets). You are entitled to copies of your own results. Some surgeries make nominal charge for printing out.

If you have Hashimoto's then you may find adopting 100% gluten free diet can help reduce symptoms, and lower antibodies too.

When you get results suggest you make a new post on here and members can offer advice on any vitamin supplements needed

If you can not get GP to do these tests, then like many of us, you can get them done privately

thyroiduk.org.uk/tuk/testin...

Blue Horizon - Thyroid plus eleven tests all these.

Best advice is to read as much as you can. Vitamin and minerals levels are very important, but standard NHS thinking, doesn't at the moment seem to recognise this. You will see, time and time again on here lots of information and advice about importance of good levels of B12, folate, ferritin and vitamin D and gluten connection to autoimmune Hashimoto's too.

Low B5 may cause burning feet and sore heels drgominak.com/vitamin-d-hor...

vitamindcouncil.org/tag/aut...

[serenfach]

I buy mine from the USA as I was unsure of the purity from anywhere else. It also reassured the GP as I gave him the leaflet that comes with the NDT and he could see it was the proper stuff and was happy to monitor me. He was actually interested in how the NDT works and is looking at a way he can prescribe it for me!

[Nannacatlady in reply to serenfach]

You have a very understanding GP! I hope mine will be the same. I just need to wait for her to get back from holiday so I can see her and ask for a print out of my results.

[serenfach]

You are entitled to your results, and dont let them charge you. Test results done recently are free. Just phone the surgery and tell them you want your results and will collect them tomorrow. You will then have time to go through them so you can ask your GP the right questions. Good luck!

[Nannacatlady in reply to serenfach]

Thank you so much 😊