Hi all you may remember a couple of months ago I posted - as I got my daughter referred to a consultant (one recommended on this site) as she has struggled for 2 1/2 years on T4 after a total thyroidectomy. She had a nightmare time during GCSEs with fatigue and is waiting for GCSE results now. Well - she got to the consultant and he started he on T3 five weeks ago . so she was on 100mcg levothyroxine and put onto 10mcg T3 (previously on 100 -125mcg Levo alternate days - bloods always okay but constant hypo symptoms) . After 4 weeks (last week) back with the consultant but she felt no better and had bloods done - her TSH had gone to the top of the range ( I don't have them to hand as they are on her phone in her room and she is still asleep) and her Ft3 was mid range and FT4 was low but in range. The consultant said he wasnt surprised she still felt ill as the TSH was at the top of the range and it needed to be near zero. He suggested that he increase the T3 to 20mcg / day, said that she had been on it for just over a month and should be feeling the benefit by now, so if she still didn't feel any better in just over another week to email him. he suggested that if she didn't feel any better he would consider prescribing NDT . He prescribes Armour but he did talk about other brands.
She says she doesn't feel any different yet - but says she has been feeling so ill for so long that she doesn't know what to expect. She doesn't know if she should she give the T3 at higher dose longer? or should she move to NDT, she is a little anxious in case it doesn't work either. she says she feels as if we - the family , are asking her how she is all the time - does she feel any different/ and she doesn't know what to say, because she may feel okay at that moment then feels cold and exhausted the next . I've told her we wont ask any more - she is due to contact him tomorrow or Tuesday. I cant help her because I don't know how she feels but I thought that someone on this site may be able to . (although she keeps telling me I am hypo as I am always cold and tired and gaining weight too - bloods done and told I am normal) - but if anyone can help her id be so grateful .