Graves and nerve pain?

[Joyliz]

Hello, my TSH is 0.05 (0.35-3.05) and I`m having nerve pain in various places in my body, and wondered if the low TSH could be causing this?

Many thanks for any help.

[shaws Administrator]

Hi, I am hypothyroid and I hope that someone who has/had Graves will be able to respond re your hyperthyroidism.

Personally, and I'm not medically qualified, and wouldn't think a TSH of 0.05 would cause nerve pain. What treatment has been given to assist your Graves Disease?

en.wikipedia.org/wiki/Signs...

[Joyliz in reply to shaws]

Thank you Shaw, I`m sorry I didn`t put all my information in my post. I have Graves and had RAI almost 2 yrs ago. At 1st when I reached 125 mcg levo I was fine...but since have developed muscle pains that seem like nerve pain! Also constant hunger with no weight gain, sweats, sore eyes, loose bowels and am wondering if I am over medicated ? I`m happy to reduce the levo but am not sure whether the levo could cause muscle/ nerve pain? Again thank you, this site is wonderful.

[shaws Administrator in reply to Joyliz]

One of our Admin's 'Clutter' had Graves but when they added some T3 to her dose she has felt much better since.

Sometime levo can cause side effects. I am hypo but levothyroxine caused me to be so stiff/painful I could barely walk. The addition of some T3 helped me also. I couldn't believe I could feel worse than eventually being diagnosed when my TSH was 100. I couldn't step onto a pavement the pain was intense all through the 24 hours.

I now take T3 only and am well with no clinical symptoms but that doesn't work for everyone. It is trial and error.

[Joyliz in reply to shaws]

Thank you again shaws, I`ll begin by reducing the levo and then if that fails I`ll see if I can try T3 by finding a source, my problem is my GP wont prescribe it and after RAI I`ve been signed off from the endo. I`m presently hoping I`m simply overmedicated.

[Clutter in reply to Joyliz]

Joyliz,

TSH itself isn't much help. Is there any chance you can order a private TSH, FT4 and FT3 test from Blue Horizon or Genova? thyroiduk.org.uk/tuk/testin...

I didn't have Graves, I had ThyCa and Hashimoto's. Levothyroxine caused muscle pain as soon as I started taking it but adding T3 calmed the adverse effects Levothyroxine caused.

[Joyliz in reply to Clutter]

Thank you Clutter, I`m speaking to my GP on Monday and no doubt she`ll want to reduce the levo. I`m happy to try that as I do have quite a few overactive symptoms. I`ll also ask to be retested in a few weeks to check TSH,T3 AND T4. I am wondering if the levo is causing the muscle pain but will try reducing 1st and hopefully that will do the trick. If not I`ll come back for more advice...Thank you again.

[Clutter in reply to Joyliz]

Joyliz,

Muscle pain can be caused by low vitamin D. If it doesn't improve within a couple of weeks after you reduce Levothyroxine ask your GP to test vitamin D.

[shaws Administrator in reply to Clutter]

Apologies again Clutter re 'graves'.

[bluebug]

My first thought was vitamin B12 and someone, specifically helvella , has posted about it before. healthunlocked.com/thyroidu...

You need to get your vitamin B12 and folate levels tested if you haven't done so and ensure the your results are optimal in the range, if not then supplement.

[Joyliz in reply to bluebug]

Thank you bluebug ....I`ll look into this.

[shaws Administrator in reply to Joyliz]

If GP hasn't tested all of your vitamins/minerals, ask for these as we can be deficient and which can cause symptoms too., i.e. B12, Vit D, iron, ferritin and folate.