had enough

does anyone else feel they are dying and just thinks... oh well, i tried, lets just hope its quick?

[Hidden]

Yep. ...definitely.

I have battled and battled and almost reached the beyond caring stage...... Caring.......About anything.

This forum has been a life line.

Without it I would have felt cast adrift with no land in sight.

I have moaned here, cried here, laughed here. Shared my fears, hopes and disappointments. At times I have felt stupid and ridiculous but it is the strength of this community that has kept me going.

[Rainbow100]

hang in there martine and let us know how we can help :o)

[Hidden in reply to Rainbow100]

thankyou so much ... its the hopelessness of it all that is the bummer... if i could see the light at the end of the tunnel... i am banging my head against a brick wall with my doctors... my hair is falling out so bad now... i think its the worst thing as a woman... i am against the clock and the balloons we call experts are clueless.... thanx again

[shaws Administrator]

Many people have felt the same at times. Thankfully they can get things off their chest on here with members who can understand. Doctors cannot and I suggest you get a Free T3 blood test done because if it is low, you need an increase in levo or some T3 added. If our receptor cells are not getting sufficient T3 we can feel pretty bad and still have clinical symptoms. If GP refuses, you can get a private one with a recommended lab with a small discount when you quote TUK's code number.

[Hidden in reply to shaws]

thankyou., i mentioned t3 to a new doc and i had to literally threaten suicide to get her to test it, .. but i want the full checks which we have to have done privately.. t4, t3 rt3, ftt4ft3... its disgusting we have to pay.. i am a single mum, struggling to keep working as am so tired.. how can our docs help us when they cant test us thoroughly enough? am so angry at this... we all deserve a healthy life, no matter who or what we are .

[shaws Administrator in reply to Hidden]

This is a link which may be helpful and this doctor gives hints on how to 'self-medicate. It is not a recommendation to purchase Thyro Gold - his product he produced to be purchased without prescription.

Dr Lowe was an Advisor to Thyroiduk.org.uk before his accidental death.

web.archive.org/web/2010103...

We have to read and learn if we want to recover our health if it isn't forthcoming from the professionals.

[shaws Administrator in reply to Hidden]

It seems to be most doctors keep to the same mantra. Some members pay lots of £s and they are no better off than previously.

We can get well but they don't allow us the flexibility or maybe sufficient hormones as it's all down to a blood test and not symptoms.

As a single Mum your children need you to be as well as possible. With hypo it does take time but you can get there eventually.

[shaws Administrator in reply to Hidden]

My personal belief is that the following link is the 'perfect' way to treat/diagnose patients,

web.archive.org/web/2010103...

[greygoose]

I think most of us here - not to mention an awful lot of people who haven't found this site, and suffer in silence - have felt like that from time to time. The body and the mind can only take so much before they need a respite. They need to stop trying and just go with the flow for a while. But, I think it's just a phase, and the majority of us come back fighting! There is always something new to try, something to learn. We might not have found it today, but maybe tomorrow.

Try just treading water for a while, to regain your strength. Just drift with the tide, and then swim on. The answer could be just around the corner.

[Hidden in reply to greygoose]

Excellent advice greygoose .. this has worked for me at times. A little rest from it all and then straight back into the ring, boxing gloves on and ready for round 2. xx

[Pastille]

Yes, absolutely, many times, and I don't have the added health problems many on here have. I feel like the hypothyroidism, although it affects me physically a great deal, affects my mental health in such an unpredictable way, that I struggle to find any balance. I just read about some of the members on here, where they have come from and where they are now, and I know that it is possible for me to feel well and have a better life, I just have to find the right way for me. Right now I am on 100 levo and 12.5 T3 and starting to feel some stability. But I'm not there yet. you will find your way. ((((martine1234))) xxx

[humanbean]

As greygoose said above, sometimes we need to tread water for a while. I seem to have been doing that a lot lately. About 3 years ago I would have described myself as barely hanging on by my fingertips. I didn't really care whether I lived or died at the time.

[Hidden in reply to humanbean]

this is how i feel right now... i cant stop crying... i am so self centred, i know i am... i hate this about myself.... i have cared for others, all my life, ... i hate feeling vulnerable, i start to curse in a morning for waking up! i dread the day, ... i dread bed time... i dont go out, i was a social butterfly, now i isolate myself , am so embarrassed about my hair ,my puffy face... levothyroxine is crap and should be put in the bin...

[Hidden in reply to Hidden]

Totally how I feel.

[Hidden in reply to humanbean]

Been there humanbean , right up until last Autumn and it's a dark place. People like you and greygoose are great encourager's. I have been helped tremendously on this forum and I know that is why I am more positive thinking now. x

[humanbean in reply to Hidden]

Thanks for the kind comments, Mango_555.

[Hidden in reply to humanbean]

Thank you too humanbean. x

[MariLiz]

Hi martine, sometimes there are other things going on alongside the thyroid problem, and it means the meds you are on for the thyroid don't get absorbed as they should. Unfortunately, thyroid is often caused by an autoimmune response, meaning the body is attacking itself. Autoimmune conditions sometimes come along in groups. I had low B12, and once this was picked up and I began treatment a lot of the awful exhaustion symptoms went away. Wishing you well. I do hope you will get the help you need. MariLiz

[Hidden in reply to MariLiz]

Me too MariLiz supplementing B12 has helped my black thought disappear.

I only discovered this marvellous vitamin on the advice of this forum, I recommend it to others all the time now. Family members are taking it.x

[Hidden in reply to MariLiz]

thankyou MariLiz... i am going to buy some b12 tomorow... what dose do u take? i didnt start it before because i was having bloods, gonna start ... i am taking so many things, like biotin and selenium... we try alsorts to get better ... x

[MariLiz in reply to Hidden]

Mine was diagnosed by the GP and I am on injections every six weeks.

You can by a sublingual spray, which I have used before I got my six weekly injections. That was four sprays under the tongue, and I was doing two mid morning, and two mid afternoon. It seemed to keep my energy levels up.

[puncturedbicycle]

Just want you to know it gets better for a lot of us, and when it does we tend not to spend so much time here, so it can seem like everyone carries on being ill after diagnosis, but that isn't true. I'm up and down, but never as down as I was. I come back here sometimes to ask a question or get a recommendation or tweak something but in general I'm much better.

My hair and eyebrows have come back completely since adding t3 to my levo. I've grown it out for the novelty of it. Before t3 I could look in the bathroom mirror and see my scalp through my hairline, and everything I owned was covered in my hair. Back then I went out to dinner for my anniversary and got to the table and before my bum was in the chair my hair had fallen on the tablecloth. If I forgot to tie it back when cooking I'd then cringe to think it had got in the food. I understand what you're experiencing.

B12 injections and d supplements helped alleviate other symptoms such as tinnitus and sore/numb feet and hands.

When I was diagnosed I felt like I was dying. You won't always feel this awful. It will feel like you're getting nowhere for ages and then one day you'll look back and see how far you've come.

[jc72]

No doubt many of us have been in dark places battling to be heard and trying to get the right treatment. I'm new to this forum but have been blown away by how helpful people are. This is a journey for many of us and learning from each other is invaluable.

[Hidden in reply to jc72]

hi jc72, i am new too... its a fantastic place to get advice, i hope in time, that when we all feel better , we in turn can offer advice and comfort . i am desperately unhappy and frustrated right now... i am feeling for the first time in a long time, like giving up.. its too hard to keep battling... i am doing it because i feel so angry at the injustice.. i dont want to be another statistic... i dont want to be like janie who wrote the sttm book,, waiting 20 years to be heard.. i have already given up my activities.. i cycled, walked, went to the gym most days... now i cant even climb stairs and have to go to work feeling like death... but apparently i am 'normal' now

[jc72 in reply to Hidden]

This is why we keep going because we remember the life we once had and think this is all worth fighting for. No doubt your words resonate with many here that share the same or similar journey. It’s good to blow off some steam; we have been failed many times by a health service we pay into. Hope you figure stuff out. GL.