I just wanted to share want I was told today on the phone by an Endo. I have been very ill for one year now and have been fobbed off so many times so decided to write to my MP as I am just getting no where. My MP sent my letter to the hospital which was passed on today to the Endo department. Surprise surprise I had a call which is a first from the head doctor for this department. I have been diagnosed with Graves and although my tsh levels are only just under range, T3 & 4 ok as I am am on PTU but TSH receptor antibody 2.2 range 0.50 anti-thyroid microsomal ab 199.7 no range then it says anti TPO result positive. He asked me my symptoms I told him aching joints and muscles feel extremely tired all the time, in the mornings I am so stiff I have difficulty getting down the stairs, memory loss, foggy brain, I can't walk far and feel like I have the flu most days and said I have never felt so ill. He said none of my symptoms was to do with graves, he said the PTU is keeping it under control and high anibodies do not mean anything and would not cause these symptoms. I am waiting to have RAI but there is a 12 -18 waiting list, he told me the RAI will not make a difference to how I feel. Any advise would me most welcome. Thank you.