fed up

[angel1306]

just been told I have kidney disease, I was diagnosed with hypothyroid 3 years ago and medication wise I have been stable on 75mcg for over 18months, is this a common problem that your kidneys become a problem

[Rapunzel]

I don't know angel. I just wanted to give you a hug. xx

[LtAngua52]

Every system and organ of your body is affected when you have hypothyroidism. All processes are slower and can struggle. That's why it's necessary to ensure you are optimal on vitamins and minerals from your diet or supplements. I've been hypothyroid for 20 years and was told 18 months ago that my kidneys were slowing down, last month a bit slower again. But, the function slows down with age anyway.

I don't know though if hypothyroidism results in any other specific disease other than slowing it down. I was just told I have stage 2 kidney disease, but my GP didn't mention my thyroid, (but they don't know much about the thyroid anyway!) But did say age contributes. Then again I am over 50!

There are more knowledgeable members on here that will probably have better answers. Are you getting any treatment? Are they doing anything? I'm just being monitored. Take care.

[angel1306 in reply to LtAngua52]

to be honest I was a bit gobsmacked when GP after 2 blood test said you have stage 3 kidney disease, I said what why how when he just said we will monitor and when I mentioned thyroid he was very quick to deny any connection??.

[Coastwalker]

Are you taking any statins angel1306?

My Mum had Kidney failure and is now having dialysis 3 times a week.

The pattern was diabettes first, then diagnosed quite late in life with Hypothyroidism, though looking back we wondered if she might have been overlooked with Hypo right back many years and wondered if the hypo really came first.

The statins then caused her diabettes to worsen causing terrible leg ulcers which were difficult to clear up till we put her on both Vitamin A and Vitamin D3+K2. She also had a skin graft operation done for a skin cancer which got overlooked for two years, but we think that thanks to the vitamins her skin cancer graft healed and cleared up in a third of the time the nurse said it usually took.

Kidney failure is a known side effects of taking a statin.

Note:- Mum had always been under medicated with Levothyroxine by her Doctor, so maybe that also contributed to her kidneys failing.

[angel1306 in reply to Coastwalker]

god bless your Mum love.x no not on statins only diagnosed with hypo at same time as going through change at 50 so 3 years, this has come straight out of the blue had loads blood test over past couple years couple of urine test showing protein but no mention ever of kidney problems am so confused

[ppeter]

My hypothyroidism was diagnosed through a blood test which indicated to much calcium in my blood. When the thyroid is not working as it should, it puts a strain on the other organs.

[bantam12 in reply to ppeter]

ppeter have you had a parathyroid test done as high calcium indicates a parathyroid problem, calcium should never be high.

[ppeter in reply to bantam12]

Oh dear. My problem was very rare. My parathyroid glands were encased in my right thyroid gland. The right thyroid gland was much smaller than the left gland and probably was like that since birth. My right thyroid was removed in March of this year. My first blood test, done six weeks after removal indicated no calcium in my blood. So to answer your question, yes, the parathyroid, or lack thereof was likely the problem.

[bantam12 in reply to ppeter]

Hopefully your calcium levels are now in the normal range, if you have no calcium you have a problem !

[MrsFitz]

I've had a kidney problem for over 10 years, not requiring treatment but I know I really need to keep my fluid levels up to avoid problems. It was only when I was diagnosed with being Hypo that the kidney issue was actually addressed. Apparently I have stage 3 kidney disease, and I am off to see a specialist in August. All the while my GP is telling me that this is very common, and no treatment is required but 'let's rule out any other issues' . The consultant has requested that thyroid antibodies results are available before I see him.

As someone who was diagnosed with a thyroid problem relatively recently, it amazes me how many other issues need to be ruled out before the thyroid is properly treated.

[greygoose]

'Stable' is not the same as 'optimal'. In fact, I hate that word, because it doesn't mean much at all when it comes to thyroid. You can be stable with a TSH of 100, just as you can with a TSH of 0.99, but the TSH of 100 doesn't mean you're well, just because it's stable.

What you need is a copy of your blood test results - it's your legal right to have one - so that you can see exactly what was tested and what the result was. That's the first step to getting well.

[angel1306 in reply to greygoose]

greygose I am sooo confused and feeling so angry that we are given straight facts of G.P'S and so called experts. When I was diagnosed hypo it was take this tablets for the rest of your life and it will be fine, yesterday when told about kidneys look and diet and fluid and we will do another blood test in 6 months. normally I if given information will process it and get on with whatever I need to do, this time I am struggling cause I see no rhyme or reason, doctor was so certain nothing to do with thyroid.x

[greygoose in reply to angel1306]

Well, with time, l think we all accept that doctors just that doctors know nothing, and just get on with it by ourselves. No point in stressing ourselves and getting angry. And they ccan't explain to us what they don't even know.

[Coastwalker in reply to angel1306]

I agree with greygoose about being optimal, you mentioned you were only on 75mcg of Levothyroxine, what were the results of your last thyroid bloods done ? My Mum was undertreated she was only on 50mcg, I managed to persuade her Doctor to up it to 75mcg, a while later she was all tired and foggy brained and not wanting to be around anymore, but Dr. said it was not thyroid, yet her bloods done monthly from renal unit proved to me she needed more, which has been now sorted by herself, she soon came out of her foggy tired state once optimally treated. I do wish Drs. would go by symptoms and not bloods sometimes.