Just had another TSH level test done and it came out to: 3.73 uIU/ml (range: 0.320 - 5.500 uIU/mL
). Last test 6 weeks ago was: 6.392 uIU/mL . Now the doctor is saying that I'm "normal" so just stay on the 25 levo. I have written to him & have asked him to up me to 50, but I don't know if he will do it or not. I'm so disgusted and discouraged! Still not feeling much better, WHY DO THEY TREAT US LIKE THIS??? Thanks for listening....
Hi sweetsusie, absolutely wrong. You can see that levo seems to be working for you since you have reduced your TSH from 6 to 3 and you should now be raised to 50 mcgs. plus another raise or two or three in the future. It is not good to remain on a low dose for very long. Order your own levo if need be. Ask for recommendations by PM. stopthethyroidmadness.com/m...
This is one of the reasons we have to educate ourselves as some will remain permanently unwell and may possibly develop other more serious illnesses. They treat according to numbers and not symptoms.
Thyroid hormones are necessary for giving us life, i.e. heart, brain and billions of receptor cells need thyroid hormones, T3 in particular if we can convert T4 to sufficient.
You can see from the following link that you would be diagnosed as being hypothyroid and that is for undiagnosed people. You are diagnosed yet your GP believes that (like thousands of other GPs) when TSH is in 'normal' range you're on sufficient hormones. Very, very untrue and dangerous for patients' health.
thyroiduk.org.uk/tuk/testin...
The aim is a TSH of 1 or below whichever makes the patient feel well. Some need TSH to be suppressed but doctors unwittingly believe that would cause problems but cancer thyroid patients have to have a suppressed TSH and they don't come to harm.
One doctor who tried to change the Association's faulty understanding of treating patients died through trying to change their mindset but their complaints to the GMC caused Dr S to appear 7 times before them but he was adamant that nowadays our doses far too low to keep the TSH in 'range' and that it was a ridiculous way to treat patients who, before the blood tests were introduced, were prescribed NDT until they were well and doses average between 200 and 400mcg daily. The GMC always dismissed the claims but it did cause, his patients believe, his life due to the stress it caused him.
worldthyroidregister.com/Go...
We have to read and learn and sometimes source our own medication.
Tell your doctor you've taken advice from the NHS Choices recommended association for knowledge about Thyroid Gland Dysfunctions, Thyroiduk.org.uk and your dose should be increased every six weeks until you feel well. Some of us don't find levo perfect but thousands do so hopefully your GP will reconsider. 25mcg is such a small dose initially, as 50mcg then 25mcg increments is the usual way.
So sorry to hear about this doctor. He sounds like he was very passionate about getting things right for his patients. I will do as you suggest and tell the doctor that I have gotten advice from the NHS Choices. Yes, 25mcg is a very small dose..this was given to me by the doctor I replaced. She's just way too conservative, besides the fact that she's a very young woman and thinks she knows everything. Thank you so much for your support and advice.
The doctor was so concerned about the 'parlous situation for patients' that he wrote to every Endocrinologist in the UK and invited them all to a Conference to discuss the matter. He was a Virologist. One by one all refused his invite and the final withdrawal was the evening before, so you see what he was up against - the establishment who purport to know more than other doctors who are/were picking up the neglected/unwell/desperate patients. Many whom he returned to good health.
Your doctor is an idiot. You're NORMAL when you FEEL Normal, not when your bloods reach an arbitrary range.
My thoughts exactly...the one that responded to me was my OLD doctor and I don't know why she would! I've written to my new doctor...he seems much more open minded and ask him why she is given me advice and not him. I switched from her because I didn't like her closeminded attitude toward me..I think it has something to do with my age to tell you the true. She's very young and I think she thinks I'm just old.
She probably thinks she's educated sufficiently but unfortunately most of the 'younger' ones only take into account the TSH as they've been instructed and let patients continue to be unwell. One scientist published a book called 'The Tyranny of the TSH' as that is what it is a 'tyranny' when nothing beyond the TSH is considered. The book is now unavailable as the author died.
However, this is another article in the same vein:-
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