Just a brief follow up to my earlier post about this issue. You may recall that I attached a copy of the PresQuipp DROP list on which I felt the document I had seen was based. Today I spoke with the CCG pharmacist/advisor and she confirmed that it is indeed based upon that list.
We had a pleasant and helpful exchange in which she acknowledged that the DROP list is scary in that it acknowledges no circumstances in which T3 might be prescribed and suggests only levothyroxine, which is far from comforting to those of us who cannot tolerate it. She said the CCG advice/proposal (the one I saw) was an early draft which had to be substantially changed. She said that it was chiefly designed (in view of cost) to address patients who have no clinical need to be in T3 by checking their medication and needs and removing them from T3 if appropriate but (and here's the rub) those who had a clinical need could still be prescribed by their GP. Now this seems to me to hinge upon several points: it depends on whether you have a GP willing to buck the clearly signposted thrust and assert independence; it depends upon an acknowledgement of clinical need defined how??; it depends upon the revised document actually saying what she says it will. She seemed pleasant, professional and helpful and I have no reason as yet to doubt her - but I have been bitten before.
She said she would give me sight of the revised document toward the end of June and as soon as she does, I shall share the outcome.
We had a brief discussion about how NHS England would be well advised to spend some time addressing the issue of patients and the NHS being held to ransom by monopoly providers. I quoted the prices in other EU countries and she was amazed (as indeed am I) but sadly there seems to be no movement to do anything at all about this daylight robbery.
So there we have it and there the matter rests for the moment. Meanwhile, a heartfelt thank you to all who have been so helpful in directing me to other sources of supply should push come to shove. The idea of buying drugs online does not sit easily with me but I am reassured by several members of the trustworthiness of various suppliers, which is more than helpful. I'll be back with info as and when I get it.