Okay, I saw an endo for the first time today at my local hospital. Waited 4 months for this day. I went in well prepared, with my graph of blood results, list of symptoms etc. Dr was fine, she listened to everything I had to say, no complaint there. As my TPO was fine and other tests, she ruled out Hashimoto and Lymphoma straight away. She agreed that it my left over lobe might not be working as well as before as it's full of nodules, but she wasn't too sure about prescribing Levo as my TSH has been up and down. On the 2nd of June 2016 TSH was 4.1 and 13th of June 2016 TSH 1.0. She would not agree that the pain I was having was from the nodules. She thinks it's from fibrous tissue from the scar from my previous partial thyroidectomy. I then asked her why would the scar tissues start aching after 7 years. She said it could be that my thyroid is going through some inflammation and every time it inflames, it puts pressure on the fibrous tissue. Being a nurse and having waited for that long for this appt, I wasn't going to just accept this. After a lot of discussion, she agreed on :
1. Referring me for a FNA
2. MRI scan of the neck (to check for fibrous tissue)
3. She gave me 12.5mg Levothyroxine
4. She will also monitor the nodules with ultra sound over a period of time.
5. She is also requesting for a second opinion with another endo who has been working there longer.
Despite explaining to her about my bad side effects with Levo and trying to convince her to add a bit of T3, she wouldn't budge. She said she wouldn't be offended if I find another doctor who would be willing to prescribe T3.
Overall, I am happy with today. The biopsy is my priority for peace of mind and I will give Levo another try. It could be thyroiditis, who knows! Considering that my TSH is fluctuating so much. According to my graph, whenever my TSH is higher, that's when I am in pain and thyroid is inflammed.
So, what do you think? Was this a good appointment or not?
Thanks for your advice and support.