Hi am Palma new to asking question s

I've been reading a few of your post I was diagnosed with under active thyroid. Over year ago and was given levothyoxine 25mg but I shrugged it off and took the medication  you see I have connective tissue scleroderma Reynolds so every time I go back to rhumatolegy I have something else wrong with me  however I am tiered all the time no energy ever so now I'm realizing maybe it is of my thyroid and not everything else that s wrong with me what do think 

19 Replies

  • hi palmla , have you got any recent blood test results? It would help members to help you if you could post your most recent results with ranges in brackets. So TSH, T4, T3,  if you have them and Vitamin B12, Vit D, Ferritin, Folate if you have those. People will have more advice for you then. It's hard to help without results  

  • Thankyou Castillo I will make an appointment with my Dr soon as .

  • Hi pastile got blood test yesterday  tuestday  hopefully getting results Friday 

  • Great stuff palmla , that was quick, the ball is rolling then, hopefully you are on your way to feeling better. :)

  • Hi pastile I just receive blood test tsh 2.87 free 4 13 .7 no results for t3 or b 12

  • Hi palmla , that TSH indicates that your thyroid is still struggling and that T4 seems low to me too. Others more experienced will comment ( you may have to write a separate post with your results ) If you look on the ThyroidUK website under blood tests you will see by the numbers, at which point the thyroid is struggling. Are you still taking 25mcg levothyroxine?

  • 25mcg starting dose may make you even worse. An endo professor here starts with 50mcg increasing after two weeks to 75 and after two weeks to 100mcg. Bloods taken after 2 to 3 months.

    This initial getting worse was noticed in Denmark: thyroidhormones.wordpress.c...  Maybe Google translate gives you the main points

  • Thankyou  Jill I am making an appointment with Dr and I will have a talk with her soon for I have never really spoken to anyone about this conditioning .thank you for your help

  • Plmia,

    I don't know if you are taking levothyroxine or if you 'shrugged it off' (symptoms or  levo) . 25mcg is too low a dose in the first place.

    There are more than 300 clinical symptoms of hypothyroidism.

    If we are diagnosed as hypothyroidism it is classed as a very serious condition that (in UK) you do not pay for any other prescribed medication for other conditions.

    Make a new appointment with your GP. (and never accept 'normal as a diagnosis) always get a print-out of the blood tests with ranges). For thyroid.

    The appointment should be the earliest possible and don't eat before it but you can drink water. If you are taking levothyroxine allow 24 hours from your last dose and the blood test and take it afterwards.

    Ask for a full thyroid function test plus B12, Vit D, iron, ferritin, folate and thyroid antibodies.

  • no dint shrugged medication off .it's just that every time I go back to Dr they tell me something else wrong with me .so when she told me I had under active thyroid I just thought oh well something else wrong .I will go back to Dr and ask for another .thankyou so much for your answer .

  • I meant to say ask for blood test 

  • > they tell me something else wrong with me

    Some thirty "else" here: drive.google.com/file/d/0B9...

    Including B12, ferritin, D, folate as mentioned already

  • This is from Thyroiduk and we have to take care of our own health as doctors know little about how to treat or diagnose us.

    Do the advice I give above for a new blood test. 






    The last two links are interconnected i.e. it is an Autoimmune Thyroid Disease if you have antibodies also called Hashimoto's.

    On the third link down tick off the clinical symptoms you may have.

  • OMG! 25mcg is such a low dose..I was on that dose before and I can't describe how awful I felt on it.I felt so dreadful that I stopped taking it.I lost all interest in life and just wished life would come to an end.After joining this forum,I realized that I was under medicated and the doctors kept me that way.My symptoms kept increasing and every 2 weeks,I was diagnosed with something new.

    Now I am on 50 and 100mcg alternate days and doing better than before.

    FT3 levels are very important which doctors ignore and also optimal Vit.D,B12,Folate,Ferritin and cortisol.   

  • Hi all just got blood test back tsh 2.87 free t4 13.7 no results for b12 or t 3

  • palmla you have just replied to your own post when really you need a separate post. It might not get seen here. Basically you need to increase your levo and be tested for ferritin, folate, b12 and vit d. Without all these at the right levels you won't absorb your levo very well. Ask your gp to increase 25 mcg is a very low dose sorry I'm trying to use my phone for this in a public place and can't really explain better than that atm

  • Sorry about that I don't know what I'm doing with these things I usually wait until my grandson comes in to help me anyway pm still on 25 mcg of Levi Dr s that s normal but I'm going back to nurse in3 wks time I'll ask her to check all that thankyou so much

  • Ah no problem, I'm the same with technology. 25mcg is quite a low dose palmla , people rarely feel good staying on such a low dose. It can actually make you feel worse on an inadequate dose than no medication at all. If you could it would be a good idea to ask your grandson to log into the Thyroiduk website and then click on blood tests and all the ranges are there to indicate when your thyroid is struggling. It would be best if you could print these out and show them to your Dr and he 'might' be happier about increasing your levothyroxine. You could really do with your T3 tested but they don't always do that but if they will do it for you that would be much better so people here can get a better idea of what's going on with you. Then B12, Vitamin D, Ferritin and folate. It's really important to get these tested and post those on here too, you are likely to be deficient so you need to get those levels right. I'm sorry, I know it's a lot of information, I was overwhelmed with it all at first, I was just too tired to read it, I had to do it a little step at a time. You will get there, just keep logging in and asking questions and you will get all the help you need. Just reply to this if you want and I will re post it for you, it's no problem, don't worry about things like that, just focus on getting yourself feeling better, that's enough to think about for now! take care palmla, speak soon x

  • Thank you for the information, I will keep in contact with you. X

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