I have found two things helped when I had palps. First I relaxed and sipped ice-cold water breathing calmly and if severe also put an ice-cold pad on my carotid artery wrapped in a cloth if it was too cold .
At other times I sat down and relaxed as much as possible. I also took a deep breath and held it whilst pressing chest towards stomach.
It is just a chance - theoretically we cannot be sensitive to thyroid hormones as they are 'orthomolecular' and wouldn't irritate us. With fillers/binders who knows what they consist of. For instance I was fine on MP T3 for months - began to get weird symptoms (for me) and couldn't figure it out until someone posted about a certain batch and I had the same batch number as did some others who were having problems. It was investigated and the result was (cannot remember the correct phrase) the T3 was of 'a proper consistency '. I took that to mean the T3 was fine but it didn't/couldn't inform us of the fillers/binders. Anyway, I've had no untoward symptoms since I switched so there had to be something wrong with MP T3 at that time.
Now, when you begin to feel bad, do you increase the dose slightly? just in case your body needs more than your prescription? Just a thought...
There's no build up with T3. T4 is long-lasting but has to convert to T3 - if it doesn't convert sufficiently maybe there's a surplus T4 in your body (I am only surmising as I'm not medically qualified)
NDT - again maybe your body doesn't like T4 in it. I tried about 3 NDTs myself.
I know you've had an awful time and I do hope you find a solution soon.
my dr will tell me its in my head because im the surgery's hypochondriac
i have felt he need for an increase for a while but when i got bloods back
(private through medicheck)
TSH 5.60 miUL/l .....0.24.2
free thyroxine 4.3 pmol/l.......12.0-22.0
FT3 5.8 pmol/l.......3.1-6.8
i tried a small increase and stuck a it a while and thats when the problems started pulse went from the 50's to 80's bad anxiety and mood swings (this happened when i was on NDT last year i increased 1/4 grain and my heart went crazy so i cut the dose down and it didnt help, even 1/4 grain and my heart would be pounding (think that was the time i landed up in A/E thinking i was dying pulse 150 + )
yesterday i was too scared to take any T3, today ive had bad panic attacks thinking of taking 5mcg
i know i should be taking something but really struggling with panic atacks
I'm sorry you are having such a struggle. Whose T3 are you taking?
I've often visited the A&E when on levo with 130+ but thankfully it wasn't accompanied with panic attacks as that's much worse. I don't think they can tell what comes first - fast heart rate or panic.
You must get stressed out as well trying to see a doctor and I hope whoever you see will be helpful. Also I hope the anti-h will show whether or not you have a sensitivity to the one you have been taking. There are T3's they can prescribe on a 'named patient' basis.
the dr im seeing is the one who diagnosed me and told me there was nothing in levo to make me ill because she takes 175mcg and has never been ill, normally everything gets blamed on anxiety
She's very fortunate indeed to take 175mcg and is well. If only you could switch places with her and you were fine on levo and she was ill on it. She'd soon change her mind.
You can tell her that there are around 40,000 on the NHS Choices Thyroiduk for info about the thyroid gland and most are saying they are very unwell on levo.
You wonder 'why waste your time and hers'.If they cannot be bothered to know the ins and outs and the purpose of thyroid hormone replacements. They need a crash course.
Even at 3.2 your TSH is too high. We cannot explain to them how very unwell we feel when the hormones aren't doing their job.
Another nasty doctor on Monday! You'll be more of a nervous wreck probably. Ask him for a small increase in levo to bring your TSH to around 1. As you and I know TSH isn't always the best pointer to how the patient feels.
Do you have palpitations all the time?
Do you allow sufficient time between T3 and betablocker?
Dr Toft in an article in Pulse Online says (I know it refers to levo but it should also be any thyroid hormone replacements I believe::
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range – 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l. Most patients will feel well in that circumstance.
But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This ‘exogenous subclinical hyperthyroidism’ is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
When I saw the heart consultant after being kept in overnight after going to A&E(Taking T3 3x5mcgs for 3 days triggered palpitations which wouldn't stop)After all the tests confirmed supraventricular tachycardia,not the dreaded atrial fibrillation,he told me beta-blockers were not of any use for my diagnosis.He knew his stuff!I didn't tell anyone I had just started on T3.Re started T3 after the all-clear & a few weeks later.Now my attacks of S.T are far less frequent than on thyroxine and resolve quickly(usually indigestion)The consultant advised ablation for a congenital heart defect causing an electrical issue.Hmm...
Ectopic beats very rare now.Very frequent with T4.
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