I have been hovering about reading the posts on this forum for some time and found the experience and insights informative and helpful so thankyou to everyone for their candid reports and experiences.
I am now compelled to write and ask for some advice.
My partner, Kat, was diagnosed with graves disease around six months ago. This was after several doctors had fobbed her off with tales of throat infection and chronic headaches. As I am sure you have guessed, it was goiters and migraines.
Only one doctor at the practice had enough insight to run some blood tests on her thyroid so, rightly or wrongly, we have some faith in him.
She was sent to an endo who put her on carbimazole. As it turned out, she is allergic to carbimazole. This resulted in a hospital stay and anaphylaxis. She is now on Propythiouracil.
In addition, she was given propranolol. Although this did lower her heart rate, it over treats anxiety and she becomes quite narky and in her own words "a horrible person to be around". As a result she has taken herself off it a few times.
She works in customer service on public transport so is quite concerned about this. The thing is that she is occasionally put in threatening situations by customers and has always been able to deal with it but now, when some anxiety kicks in, she perceives situations to be more threatening than they are. This has been flagged by some management and there have been some comments about whether this is the job for her. She does not want to lose her job, she enjoys it when able and for the industry it is, it pays well.
Apparently her thyroid levels are not coming under control (we are currently trying to get copies of her records and results) so there has been some talk of surgery. She is not keen on this at all. She feels that it (and RAI) is a one way street and from research she has done, rarely is an end to the problems, usually resulting in the development of one or more alternative immune disorders to take its place. I tend to agree. I do however assume that the experiences you will hear about on forums etc will tend to be more negative simply because, if it is a success and you can get on with your life, you are considerably less likely to be seeking advice.
So, finally, after my lengthy tale, these are my questions.
I was wondering if anyone had had a positive result from either RAI therapy or a thyroidectomy?
I personally am not a great believer in homeopathy and think, with this condition it could be fatal, but I do believe an holistic approach could be valuable. Does anyone have any experience of successfully complementing traditional treatment with diets, supplements etc which could aid her energy levels, help minimise the reliance on PTU and possibly avert the need for surgery? Any references to specific diets would be greatly appreciated as figuring it all out and managing it will fall mainly on me when she is struggling. (I am self employed and do most of the cooking anyhow but when she is struggling, I have the all of the house and dogs to tend to so time is at a premium)
Does anyone (please pm me) recommend any particularly good endocrinologist in Scotland? We would willingly travel to England but not sure how referrals etc would work. We are near Edinburgh.
Thankyou for any advice you could offer.