NDT: Please could anyone post on here, or message... - Thyroid UK

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NDT

KateUK profile image
14 Replies

Please could anyone post on here, or message me with the details of a doctor who will prescribe NDT? I will travel, I am based in Lancashire and could travel anywhere in the North, will go south if necessary. I feel like my health is falling apart on Levothyroxine. I'm desperate.

Thank you.

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KateUK profile image
KateUK
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14 Replies
Marz profile image
Marz

thyroiduk.org.uk/tuk/diagno...

Have you tried posting here on the forum with your results and symptoms - am sure many helpful people will reply :-)

KateUK profile image
KateUK in reply toMarz

Not yet but I will. I will ring the hospital for my latest blood test results.

Marz profile image
Marz in reply toKateUK

People here often have more knowledge than specialists - :-)

Treepie profile image
Treepie

There is one who works in the NHS and at a private hospital in Elland ,West Yorks.

I suspect he only prescribes initially privately but do not know for certain.He will want to carry out blood and maybe other tests first to rule out other causes of your illness. So gets expensive .

PM me if you want more detail.

Gayrose profile image
Gayrose in reply toTreepie

I need the name of the Doctor , I am desperate also to find a doctor willing to prescribe I am in Hertfordshire :(

Treepie profile image
Treepie

You may be better trying Loise Warvill at Thyroid Uk for one nearer you and saying "please" mght help.

Jaybrooke profile image
Jaybrooke

I had the same problem no doctor or endocrinologist would prescribe either T3 or NDT no matter how I felt in fact last endo got really annoyed at my even asking , " we don't prescribe NDT and that's an end to it" only alternative was to self medicate so I opted for thyrogold ( dr John Lowe) . I started taking it in April of last year and feel so much better , no pain, no numbness ,no tremors , no palpitations etc and more energy , I just e mail to U.S. And arrives in a few days .

Gwendoline1612 profile image
Gwendoline1612 in reply toJaybrooke

Hi

I would appreciate more details re the thyrogold please and where I can get it from?

Many thanks 

Gwendoline

Jaybrooke profile image
Jaybrooke in reply toGwendoline1612

Hi , you just need to  type in ' thyrogold' or 'how to order thyrogold' all the info is there for you . You can buy it without prescription as it sold as a natural thyroid aid and makes no claims but make no mistake it is from the thyroid of cattle in newzealand and has T4 T3 T2 T1 . Dr John Lowe has sadly passed now but his wife has kept up the production . You can read many success stories from grateful patients who did not do well on thyroxine or there doctors would not prescribe T3 or NDT ( armour) . I was one who got very little help from GP s and even endos as you probably know they are adamant T3 and NDT are not needed to make you well , !!! Hope this helps jay

Gwendoline1612 profile image
Gwendoline1612

Hi KareUK

I'm with you on this, my Doctor is worse than useless, and if I hear from him I am within the range one more time I think I will explode.

Gwen 😤

I know one who will prescribe privately with BUPA in Birmingham PM me if anyone wants details. He will probably try T4 with T3 first he did with me. I am out this am but will get back to messages later today.

Jewiemax15 profile image
Jewiemax15 in reply to

How much does it cost to see him?

Jewiemax15 profile image
Jewiemax15

Hi I saw Dr Bowen Jones at Clatterbridge, Wirral. He asked my GP to prescribe NDT, and GP refused. Then he asked GP to prescribe T3 (in Oct 15). Am waiting for GP's to give the go ahead but in mean time have ordered my own NDT as at least he will monitor me. X

in reply toJewiemax15

I did have BUPA policy so I am not sure of initial costs, but soon as you start on NDT the policy is void as it is not licenced in UK. Further visits were £150 each plus the cost to get the medication from his prescription. He then told me after a few months to buy it direct form USA which I now do and GP monitors.

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