Hi

Hi could any one help I have just been to the doctors about my thyroid and to have a review I told my doc that over the past month or so every time I sit down or lay down In bed the room stars to spin even had it on way back from doctors in my car they said it could be my thyroid to blame and left it at that what I'm not happy about as it needs sorting out I drive for a living and if it keeps up I'm going to have to quit my job as can not be putting my own life and others at risk it gets that bad I pass out has any one else had this with a under active thyroid if so what can I do as I don't seem to be getting anywhere with my doc

6 Replies

oldestnewest
  • Hi Darren I had an illness called labryinthitis and symptoms sound just like yours. It took them ages to diagnose me and the very worst thing was to syringe my ears which nearly knocked me out as I had to cling round the waist of the nurse (I had been sitting on a chair) as my eyeballs even appeared to spin (like when we watch a cartoon).

    nhs.uk/Conditions/Labyrinth...

  • Hello Darren,

    Welcome to our forum and sorry to hear that you feel unwell.

    I was dizzy and staggered before being medicated on thyroid hormone replacement. It initially cleared, returned after a later and has now gone with a slight med alteration.

    Thyroid hormone replacement works best with optimal iron, & nutrient levels & healthy adrenals. If you meet this criteria and your meds still aren't working correctly, perhaps the dosage is wrong ?

    Can you post any blood test results, meds & doses in order members can comment.

    Flower

    …………………………………………………………………………………………………………………….......................

    Disclaimer: I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

    …………………………………………………………………………………………………………………….......................

  • Hi Darren. I occasionally have attacks of vertigo, and, like Flower, it seems to be when I'm a bit under medicated and need to increase my dose.

    Bear in mind that many forum members have found that doctors tend to keep them on a lower dose than what they need to feel well.

    If you have any recent blood test results that you can post, knowledgeable members will advise whether your dose is likely to be adequate, or might need to be increased.

    Or if you feel brave, you could just take a higher dose for a week or two, and see if that helps. If you overdo it, you might find you feel a bit wired or jittery, or your heart might race - so be careful.

    Good luck

    Geoff.

  • This sounds very like BPPV (Benign paroxysmal positional vertigo)

    Look at this page which seems to explain it clearly. Click on the circled + signs at the right to expand parts of the page.

    msdmanuals.com/en-gb/home/e...

    Here's another useful link (uk this time)

    patient.info/health/benign-...

    BPPV is caused by calcium particles which get into the wrong part of the inner ear. The Epley manoevre can be very effective in shifting these to a safe place and sorting it out, but you must get medical help with it. My doc was in a hurry and told me to look it up on YouTube - not a good idea - the man at the hospital was horrified when I reported it to him (I was taking my husband to see him, so mentioned it).

    The good news is that the Epley manoevre cures it. See your doc and if he won't do the Epley ask for a referral to hospital. Maybe just ask for a referral anyway as the experts can then decide whether it's BPPV or something else.

    There should be no need to quit your job.

    All the best.

  • I suffered Labrynthitis too when under-medicated for under-active thyroid (still am under-medicated - just less so). Haven't had it for a while now thankfully.

    Very difficult if you are a driver for a living :(

    Post your blood test results here for members to comment and what other symptoms do you experience?

  • I get it but quite rarely thank heavens.

    It all starts when I wake up, I open my eyes and they just want to spin over to one side over and over. I am very light headed and dizzy when I do get up and go downstairs.

    So I always have to curl up on the floor on my hands and knees and tuck my head under my arms for about half an hour, when I feel a bit better I have a banana or something and that helps.

    Afterwards my colour is back to normal, but I am as white as a ghost at first and certainly couldn't stand up without wanting to keel over.

You may also like...