Been on NDT for nearly 2 years now!

Morning All and lots of Love!

Just a quickie - I have been on NDT for almost 2 years now and have been fortunate enough to find that it seems to agree with me, as most of my symptoms are gone or much less. However, the last few weeks, I got jittery and was having tremors - thought I might have been taking too much at 2.1/2 grains. So stopped taking it all together - no difference, still tremors, so will restart it. Anybody got any ideas on the tremors? It is mainly in my hands, but sometimes my whole body seems to on the go?

Love Sheenah

12 Replies

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  • How are your levels of B12 ? :-)

  • Hello Marz!

    Don't know - but I think I have some in the cupboard... many Thanks

    Sheenah

  • Once you start supplementing testing is worthless - as results are skewed :-( Your B12 needs to be around 1000 to prevent cognitive decline and over 500 to prevent neurological damage.

    b12deficiency.info/signs-an...

    Scroll down for the symptoms - the neurological ones are first up. The Active B12 test done at St Thomas Hospital does not require you to stop taking B12 for weeks on end.

    If you are taking the Jarrow lozenge - try to keep it under the tongue until dissolved and taken up by the micro-circulation - thus avoiding any gut issues.

    Sorry - have become very bossy about B12 :-) Just like thyroid issues it is overlooked time and time again....

  • Thanks Marz - that is one pretty comprehensive list of symptoms!

    Many Thanks for your usual wisdom!

  • It could also be your adrenals. What are your sleep patterns like?

  • I sleep like a log - wouldn't wake up if I wasn't prodded sufficiently!

  • sheenah,

    I suggest your adrenal glands might be causing the tremors.

    It is good that NDT is tolerated by your body but if the adrenals were functioning out of sync, they will eventually become compromised. Poor diet and stress exposure will increase symptoms.

    You could do a saliva streets test. (link below).

    Flower

    Saliva Stress Test (test ref END01)

    thyroiduk.org.uk/tuk/testin...

    Four saliva tests that measure the available "active" cortisol (& DHEA) secreted at set times over a 24 hours period. The results will allow you to see any imbalances in the daily circadian pattern so enabling use of correcting supplements to aid your adrenal health. Unfortunately this test is not generally used or recognised by GP's.

    The cost is £77.00 which is a discounted price for ThyroidUK when code A42AQ is used.

    HPA axis explained

    dujs.dartmouth.edu/2011/02/...

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    Disclaimer: I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

    …………………………………………………………………………………………………………………….....................

  • Thanks Flower

    Yes i have done an adrenal test in the past- Diet is not particularly good because I don't have an appetite at all - have to force myself to eat - I forget to eat - three mouthfuls in and I have had enough - I don't get hungry. This has happened for a long time now - don't lose weight however!

  • sheenah,

    Any time that you are not meeting your body’s needs for energy with adequate fuel, you will be stressing your adrenals further forcing them to secrete additional amounts of cortisol and adrenaline. The hypothalamic-pituitary-adrenal axis will be compromised without adequate nourishment as high/low cortisol will suppress thyroid function and weaken the immune system.

    Healthy thyroid function depends on keeping your blood sugar in a normal range, which depends on healthy thyroid function. Irregular meals can encourage blood sugar problems and so insulin resistance (when sugar is unable to enter the cells although high in the blood.)

    When blood sugar falls too low (hypoglycemia), the adrenal glands release stress hormones to signal the liver to break down proteins and fats for energy (this causes a lot of bodily stress and inflammation) by stimulating the use of glycogen (stored sugar in the liver).

    Once these are depleted, tissue breakdown begins (the breakdown of proteins and fat to make glucose for energy) and the body will then tell itself to lower metabolism in order to preserve energy, meaning slowing down thyroid hormone synthesis.

    Irregular meals will encourage low stomach acid that will allow bad gut bacteria to flourish and inhibit digestion and absorption of the small amount of food you are consuming, eventually making you malnourished.

    If I miss a meal I get shaky and disorientated which is alleviated quickly with food.

    Eat regular healthy meals that include protein, fats and low GI carbs for better thyroid function and good adrenal health. Protein is hugely important as Tyrosine (an amino acid from dietary proteins) is one of the important components of thyroid hormone.

    Flower

    ………………………………………………………………………………………………………………

    Disclaimer: I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

    ………………………………………………………………………………………………………………

  • Thank you Flower for your extensive reply, which I have printed. As from now I will endeavor to plan my food better. We eat well in terms of nutrition - my husband has a very good appetite, it's just that he ends up eating mine as well! I try and adhere to the STOP AND EAT mantra but I am going to have to be tougher on myself in order to be gentle!

    Thanks again

    Sheenah

  • Sheenah, it would have been better to reduce NDT dose to see whether tremors improved than to stop it. I also get tremors when I forget or don't eat because I don't have an appetite. I was advised that small frequent meals/snacks should be taken. I do find eating a small snack will stimulate appetite a little a couple of hours later.

  • Hello Clutter!

    Thanks for your reply!

    Yes I did reduce the dose before stopping it - as it didn't seem to make a difference, I went back to my original dose. I have had a poor appetite for several years now and you are quite right in what you say about small frequent meals. I am afraid it is simply down to me to make the effort - fortunately I have to cook for hubby, otherwise wouldn't think about food at all which is ridiculous. Plus the fact that I am getting older, and need to look after myself better in terms of nutrition. I hope you are well yourself as we brace ourselves for another year! xx

    Sheenah

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