Stop the Thyroid Madness........: The title is... - Thyroid UK

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Stop the Thyroid Madness........

SAMBS profile image
16 Replies

The title is the name of website that came up in relation to Thyroid problems and Blood Pressure.

The following may or not apply to all or anyone on this Community, but the last sentence could be part of the answer to my dropping platelet blood count, which I've never thought of as being connected to my Thyroid. So my research continues for answers for my whole health and - seemingly to me before, unrelated but successive conditions.

My own blood pressure isnt a problem, but others with Thyroidism, may have one!

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Did you know that a poorly functioning thyroid, or inadequate treatment with T4-only medications like Synthroid, Levoxyl, Extroxin, et al, can be a factor in blood pressure problems?

It’s true. A large body of either undiagnosed thyroid patients, or those on the inadequate treatment of T4-only, develop blood pressure problems…sooner or later.

Granted, at first, it’s common to have low blood pressure due to your thyroid disease or being treated with T4 meds. Low blood pressure is caused by a lowered force of blood being pushed through your arteries due to the lowered metabolism of thyroid disease. In this case, the upper number, called the systolic, is lower than it should be.

And having adrenal insufficiency, which is common with hypothyroid, can also create a low circulating blood volume via the loss of salt.

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It may also answer questions for some others!

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SAMBS
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16 Replies
Treepie profile image
Treepie

There are also two books under the same title that are useful.

decembersignup profile image
decembersignup

Think you will find that a lot of people will say that whatever you are suffering is because of the thyroid, when perhaps it is because of the medication. I was told my blood pressure going up to a dangerous level was because of my underactive thyroid. Yet it had been low before, and it only went up when I was on medication, and when I stopped the medication it went back to normal, same with other horrible symptoms and side effects of the tablets.So don't let anyone fob you off with saying it is normal when you have a thyroid problem and that is the cause of it.

One of the things I find hard is when you work out something and then someone else tries to second guess you and rethink it as though you are unable to work it out. You must have got it wrong, made a mistake, miscalculated or forgot something. Usually they are just desperate to hold onto their original beliefs and have to say you are wrong so that they can continue believing their original beliefs.

SAMBS profile image
SAMBS in reply todecembersignup

Decembersignup! Thanks, I DONT and never have had a BP problem, it's checked very regularly. I also didn't say I had, just that the last sentence may apply to me for my actual low blood cell count, not pressure. So if people start giving me advice on that score it will be irrelevant for the moment, if my leucoctyes and platelet counts continue dropping well below the norms, especially my platelets, I may well have a low BP reading one day but not now!

I was 'officially and medically' diagnosed with Thrombocytopenia early this December. Undiagnosed and underlying infections, that cause so many other health problems, being a problem for so many others as well.

For me it probably all started with a TB infected gland removed when I was baby, also a genetic problem for me because, TB related was also on my father's death Certificate in 1998. He had TB twice in his life! So don't worry I've done so much research for myself and found out so much tht I know where I'm coming from!

It was someone else who does have thyroid + BP probs, that made me look it up for the 1st time and I thought it was worth putting on here if others also have a similiar problem.

PS I've take Thyroxin almost every day since May 2000, only a deliberate dosage alteration by me followed by 4 day stop 4/5 months or so ago, proved to alter my TSH level! which is coming back down since back on it, but I'm still on a slightly higher dose than I used to take, my next blood test will be around 14/15 January. I'm expecting the TSH reading to be lower still.

faith63 profile image
faith63 in reply toSAMBS

You do know that TSH, is not a valid way of dosing? That the most important reading you can have is a free t3? Even that is not enough, really, but at least might indicate if you have enough active hormone available for your body to use. I hope you have been getting that test done!

Coastwalker profile image
Coastwalker in reply toSAMBS

SAMBS can you do a link to 'thyroid and BP probs' on STTM please as I have a friend that is wondering if the two are connected and I might be able to print it off.

Thanks.

Coast.

SAMBS profile image
SAMBS in reply toCoastwalker

Coast walker what is SSTM?

When I do searches on iPad Air2 with IOS 9 OS, using the Safari browser, I either go to Wiki or literally just type in a couple of words like Thyroid and Blood Pressure on Safari, then look at the different link options.

Stop the Thyroid Madness is the name of the link I used. I've copied and pasted all I saw on there, as said above.

Sorry, I don't use a PC or laptop.

Coastwalker profile image
Coastwalker in reply toSAMBS

Apologies SAMBS,

STTM is the short name for Stop The Thyroid Madness, though I expect you worked that one out. :)

Thanks I will do a Google for thyroid and BP and take a browse on STTM too.

SAMBS profile image
SAMBS in reply toCoastwalker

Sorry forgot about Acronyms - was sorting out a bathroom water leak also when I saw your reply :-)

No need to apologise as my brain was in different place as above!

Coastwalker profile image
Coastwalker in reply toSAMBS

Hope your leak is sorted, a good way to start 2016, ;)

Happy New Year SAMBS

SAMBS profile image
SAMBS in reply toCoastwalker

Hi Coastwalker, thanks yes it has, I leant on the basin accidentally, oops, it moved....Not long later no water :- cheap or what? No plumber necessary, just brute force and ignorance on my part :-))

HAPPY NEW YEAR TO YOU ALSO

x

decembersignup profile image
decembersignup

Why not take your own blood pressure regularly? A machine is very cheap.

SAMBS profile image
SAMBS in reply todecembersignup

I have onedecembersignup - As I said my BP is taken regularly !

When should you take your blood pressure and is it more than once a day and is this sat down or layed down

SAMBS profile image
SAMBS in reply to

sorry Sweetpea, can't answer your question, I never take my blood pressure. I go on 'gut instinct' - not good perhaps, but I have several health issues - usually telling me not to any meds except for my Thyroid!

different prescribed meds can counteract each other and cause a lot of neural (mental) problems, like anxiety, depression, loss of appetite. each individuals own health on a day to day basis can affect how thyroxin acts as well, leaving you feeling any of the above one day and but not the next. There will never be a perfect and constant day-on-day scenario if you are hypo or have Hashimotos, Autoimmunethyroiditis! I don't know about being hyper.

Other than for trying to work the menstrual cycle and temperature taking to know when it's best trying to conceive, I don't see where else temperature comes into it, unless you have an infection/illness causing a raised temperature.

I am not medically qualified, just someone with a few health problems and 2 autoimmune conditions. if you have your last blood test results, may I suggest you make a new post, ask the same question you asked me and also post your test results at the same time. admins and others will be able to respond to both.

Your Blood test should include TSH, Free T3& Free T4, VitmB12, Vit D, Folate and ,Ferritin as a minimum.

Have the blood test 24 hrs after your last Thyroxine dose taken. It should also be a 'fasting' one I.e. you have not eaten later than 4-6 hours beforehand. this is why early morning blood tests are better, then you can take your Thyroxine, with a large glass of water and eat no sooner than between 30-60 minutes afterwards. if you have to take any other meds in same day, try not take at same time as Levothyroxine.

sorry if this doesn't answer your initial question, but may add to your knowledge if you weren't aware of above.

Thank you sambs

SAMBS profile image
SAMBS in reply to

sorry Sweetpea, my other comment above now probably totally confused you - I do have a BP monitor. my Oh used to take his BP regularly because he is type 2 diabetic and had a triple bypass. I did take mine few times 4 years ago, it's now that I never take my BP! I should read my own replies more often. talk about confusion, yes it traps me on occasion! apologies again. but my more recent reply to you and not decembersignup is the one that's relevant.

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