No one listens: Hi , I had my thyroid removed ,... - Thyroid UK

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No one listens

Jomo19 profile image
6 Replies

Hi , I had my thyroid removed , 5 years ago,, since then, I have been suffering with chronic fatigue, weight gain , and worst of all serious joint pains especially in my feet, my daughter sent me an article about, the use of pigs thyroxine, which when taken cures most of these symptoms, I have asked my GP , and my oncologist about it and the don't seem to want to know, can any one out there, give me more information on how to get treated this way , as my life at the present is hell at times due to the acute joint pain,

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Jomo19 profile image
Jomo19
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Marz profile image
Marz

Others will come along to advise you about Natural Pig Thyroid treatment. I just wanted to ask if you have had the following tested ? - B12 - Ferritin - Folate - Iron - VitD. They are all connected to the efficient and smooth running of the body and the thyroid treatment.

What dose of T4 are you on ? If you have any recent blood test results - then do post them with ranges and lots of people here will help you. Maybe the levels are not quite optimal. LOW B12 is very common in Hypo people and can cause issues with peripheral neuropathy if not treated....

People here will have you well in no time :-)

weg1 profile image
weg1

morning

i wonder what treatment you are on. and how your bloods look. i'm not one to go by the results, more on how i'm feeling. they do give a good guide line though.

have you had your vitamins checked B12 and D. as these need to be top range not just a dr's 'good'! and they affect fatigue and pain a lot.

i was on mercury pharma brand levo for years and still had symptoms, just recently started t3 liothyroxin only and joint pain has diminished.

you will find lots of info on pigs thyroid (natural) here, haven't gone down that route yet.

i got no where with dr and consultants, actually got worse! they may have ignored hypothyroidism, treated me for breast cancer, diagnosed hypo and lupus and then breast cancer again and more! given me a band aid and said but you look well.

have been very active in my own health this year, there is so much to take in and with a brain that has been battered it's hard going but worth it.

i started with the book stop thyroid madness

and got myself a hormone test kit, now wondering who i have the confidence in to discuss the results with, endo; rhumy; oncologist or Dr, no joined up thinking between them!

look after yourself, it can get better and hope you find the treatment for you.

toni12345678 profile image
toni12345678

Hi yes I used to take it Armour thyroid granular its is good I used to get it from my cronic fatigue private doctor until it was banned but I've been advised that Nutri thyroid granular is similar I've not tried that yet as I went onto thyroxine when the natural one wasn't available and now going to switch. Hope this helps

Clutter profile image
Clutter in reply to toni12345678

toni12345678, Armour NDT isn't banned in the UK. It's rarely prescribed on the NHS because it isn't licensed for UK use. NutriThyroid doesn't require a prescription because it doesn't state whether it contains active ingredients T4 and T3 and is therefore considered to be a supplement.

______________________________________________________________________

I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

Clutter profile image
Clutter

Jomo19, If you post your recent thyroid results with the ranges (figures in brackets after results) members will advise whether you are optimally medicated. Thyroidless patients often need the addition of Liothyronine (T3) as Levothyroxine doesn't always deliver good FT3 levels. T3 can be prescribed on the NHS but some CCGs insist GPs need a recommendation from a specialist to prescribe it.

NDT isn't licensed for UK use so is rarely prescribed on the NHS. Most members using it have private prescriptions or buy on the internet and self medicate.

Ask your GP to test ferritin, vitamin D, B12 and folate. They're commonly low/deficient in hypothyroid patients and this can cause musculoskeletal pain, fatigue and low mood similar to hypothyroid symptoms. Post the results and ranges in a new question for advice.

_______________________________________________________________________________

I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

Balancedchoices profile image
Balancedchoices

Hi there. I also treat myself naturally and yes the symptoms will go away almost immediately. It's almost like a miracle. There is a company now in England that supply natural thyroid from pigs and also from sheep I think it is full stop however from my understanding they bring the animals frozen from New Zealand and then make the capsules here. Something like that anyway. I will find the name for you......

the-natural-choice.co.uk/Me...

I take them along with another company that basically do the same things but you can only get these imported from America. It's called Raw thyroid I will get you a link for that now. The only way is to treat yourself.

Just slightly off the track my doctor keeps asking me have I had a check for diabetes and I'm understanding that once your thyroid goes down you're also prone to get diabetes and they all seem to be a bit surprised that as yet I still don't have diabetes? So I think that the tablets that I had mentioned above that I take really do help to keep me balanced. They may be expensive but I can only say if that's the case it's worth every penny.

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