I have posted on this forum a few times and I am still trying to learn and read every day as I am practically house bound again at the moment. Really grateful for all the advice or communication as can be a really lonely disease at times......
Been in this state before, the first time in 2011 after I had a bleed on the brain, lost movement down the left side, lost feeling in arm and leg. Back then Dr S was certain caused by years of misdiagnosed Hypothyroidism as have been struggling since my late 20's.
I posted my recent blood tests the other day, which do not and never have represented my symptoms what so ever, it took my sister to actually have full blown Thyroid Eye Disease until the NHS realised it was thyroid related. And, from the 6 weeks after meeting Dr S I regained full health for a while, then conversion issues were obvious as had to keep upping the dose until it was clear that I over medicated.
Wondered if anyone can advise on my TSH level which stays the same no matter whether Im not taking anything, which has been for 5 months now or am supplementing on what ever dose of Levo.
Could it be possible that I have a blockage from the damage to the brain from the stroke, Hypopituitarism which is also associated with adrenocorticotropic hormone. And as my early morning cortisol was 171 the other day, waiting for the lab to provide me with the reference range but Rheumy (under this dept because I cant get Endo referal) is concerned about it.
Might it b possible any of this connected?
Also, Im due to start one of the following... NDT, Levo or T3 in a couple of weeks under Dr P, cant really afford to order them all, am taking Adrenal Extra to kick start the adrenals, can anyone recommend which ones to order?
Sorry if this is total nonsense, I have no brain at all at the moment!