Are there any "official" documents anywhere stating the purpose of taking thyroid medicine? Based on what I've read on this forum their aim is to reduce TSH to about 1 (just above or just below), but is this written down anywhere in documents the NHS may accept?
Also, similar question for the best time to have blood drawn for testing. I've seen plenty posts saying first thing in the morning on an empty stomach, but is it officially documented anywhere?
I'm also wondering if there's anything official anywhere which refers to flare ups? My symptoms come and go. Most of the time they have no real impact on my day to day life other than when I get up in the morning and have to shuffle round like Charlie Chaplin for 10-20 minutes, but every now and then they all flare up at the same time and the symptoms I usually don't even notice start to impinge on my life. Usually the flare ups last for a week or two, but the current flare up has been ongoing for 9 months now and is the worst I've ever had.
I've searched on various web sites but can't find anything other than posts on this forum.
I ask mainly because all my tests for the last ten years were at random times during the day, often being the last appointment of the day (17:30), and never on an empty stomach. After first diagnosis of hypo and starting on thyroxine (December 2005, TSH 6.12, 25 mcg prescribed) my TSH dropped to 1.26 before slowly climbing over the next seven years back up to 5.66 (December 2012. Still on 25 mcg, but the chemist kept changing the brand they gave me during 2012), at which point my doctor stated I was better, didn't need thyroxine any more and stopped prescribing them. Within two months my symptoms have returned and the TSH count has varied between 3.39 and 4.9 (still had it tested annually) My doctor's diagnoses for my achilles pain have been pulled muscle, trapped nerve, slipped disc etc and all the other symptoms I have are "just coincidence" (in response to my direct question "How does a pulled muscle in my calf affect my digestion and give me dry skin on my forehead?"). He did test for a gazillion other potential problems which all came back negative, but just repeatedly stated there was nothing wrong with my thyroid. The only two occasions my FT4 was tested it was 11.9 (when TSH was 6.12) and 15.8 (when TSH was 5.66) TSH range 0.3 - 5.0, FT4 range 9 - 25. So far as I can see no other Thyroid tests have ever been completed (unless they are recorded with a name which isn't obvious?)
Changed to a new practise now, hence my desire for some form of documentary proof of what I'm telling my new doctor. I'm awaiting a blood test for connective tissue disease that he requested (whatever that is) and my new doctor has stated that if that shows nothing untowards then he'll trial me back on thyroxine for a couple of months to see if it works, based on the fact I was prescribed it for seven years and I've told him it worked fine. He also asked me if I'd ever been shown my test results or had them explained to me. I hadn't, but now have access via PatientAccess and know what they are all the way back to my first ever test in 2012.