Hypo or fibro

[Twinkle1964]

Well still not feeling good. These last few days been soo tired and achey haven't got anything done. My shoulders and neck area is the worst and keeps me up at nights tossing and turning. It doesn't help being post menopausal! Even though had thyroid bloods check at beginning of year were within normal range I feel are still a bit high 3.6 (0.5-5.0). Been on 75mg levothyroxine for 2 yrs now. Think will get an appointment to get them done again. Any ideas would be appreciated. Going on holiday in 4 weeks and way I feel just now don't know how I'm going to manage being tired all the time! Had my fibromyalgia under control for this las t 18 months so can't understand what's going on and haven't changed anything!!

[shaws Administrator]

When you state 3.6 (0.5-5.0 I am assuming you're referring to the TSH, if so it is far too high and should be around 1 or below and some even feel better when it's surpressed. That's the GPs biggest mistake in thinking anywhere in the ref. range is fine. It might be o.k. if someone's not been diagnosed as hypo but if hypo we need a low TSH to relieve symptoms.

[Twinkle1964 in reply to shaws]

Sorry Shaw yes it's tsh. Just trying to get an appointment for doc now is the problem!

[shaws Administrator]

Just a reminder if you have another blood test. It should be as early as possible and fast (you can drink water). Leave about 24 hours between your last dose of hormones and take after test. Also ask for B12, Vit D, iron, ferritin and folate if it's been a while since you've had them tested.

[Twinkle1964 in reply to shaws]

Thanks shaws

[Marz in reply to Twinkle1964]

...and push for the FT3 and thyroid anti-bodies if they have not been tested. Low T3 is often one of the culprits of all over body pains like fibro. VitD is anti-inflammatory and also needed in ALL the cells - just like T3. So if both are low then there is not enough to go around and do its valuable work. When low things begin to go wrong. Could you have the tests done privately if your GP will not oblige.....

[Twinkle1964 in reply to Marz]

Thanks Marz yes I can easily pay to get them done privately if he won't do it. Just have to wait and see hopefully he will do them all!

[Twinkle1964 in reply to shaws]

Hi shaws well I've managed to get app for Thurs at 8.30am so nice and early. Next thing now is trying to convince to do the blood tests. Will let you know how I get on.