crying: This may sound daft but here goes anyway... - Thyroid UK

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stig5882 profile image
49 Replies

This may sound daft but here goes anyway.... I have now turned into Tiny Tears... :( I cry for everything from saying goodbye to friends and family, reading sad stories, watching adverts on telly and even when talking to someone about my crying. Am I going stark raving mad or is this connected to my recently diagnosed underactive thyroid ? I feel like a freak as this has got way out of hand and I do NOT feel depressed (as has been suggested) I just seem to feel emotions very strongly and even happy thing make me cry..... HELP!

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stig5882
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49 Replies

hi there stig your only human with feelings what wrong in showing them take care i'm Alan and its nice to meet you

stig5882 profile image
stig5882 in reply to

Hi Alan, thanks for your reply :)

It is much more than showing feelings, I can't say goodbye to people in hospital without crying, even though I know they will be home soon or even thinking of crying makes me cry, tears stinging my flippin' eyes now trying to type this at the same time I'm laughing at myself.....this is flipping driving me crazy....please tell me there is a cure for this....lol

in reply tostig5882

hi Stig sorry i can't think of anything that would cure you of this emotion as your just a human like everyone else. i hope i'm not making you cry i try and make you laugh it is strange when we think of things we do or don't do take care speak to you later your friend Alan xx p.s their's one goodbye you will never receive and that's from me take care Alan xx

stig5882 profile image
stig5882 in reply to

Ahh! Thank you Alan :) I am very pleased to meet you. Loraine.

in reply tostig5882

hi Loraine for the moment i thought you where going to say that your the stig of top gear haha , i'm very pleased to meet you hope your well sleep well take care speak to you again Alan xx

pet-lamb profile image
pet-lamb

Hi stig I've been finding that I'm overly emotional too recently,I put it down to hashimotos but I could be wrong,never be afraid of tears there healing

stig5882 profile image
stig5882 in reply topet-lamb

Pet-lamb thanks, just wish I didn't feel everyone else's emotions also....:(

shaws profile image
shawsAdministrator

Don't worry this is very common. Once you reach your optimum of thyroid hormones (levo I assume) you'll be the same person you were before.

stig5882 profile image
stig5882 in reply toshaws

Thanks for repying :) I have been told I have underactive thyroid but my doc won't treat me as she say's my TSH was too low 4.9 mu/L (0.27 - 4.20)

that was 18/08/2015 she said level would need to be nearer 10 mu/L so I started self medicating with T3 as I was really breathless and putting so much weight on :( I just got new results today which show my TSH level as 0.07 mu/L and it says TFT's are consistent with T3 therapy so now I guess I gotta confess to the doc and take whatever comes :/ ????? I have to say my breathlessness has eased greatly. :) This is all so very confusing... :(

Eddie83 profile image
Eddie83 in reply tostig5882

This is INSANE! Waiting to treat a patient until TSH=10 is malpractice. Before you "confess" that you have treated yourself (smart!), confess to the doc that she needs a refresher course in current thyroid treatment methods.

shaws profile image
shawsAdministrator in reply toEddie83

Unfortunately Eddie83 that's what the BTA guidelines state. Some UK Endos will treat around 5 with symptoms but many will say wait till your TSH is 10. They are so hard-hearted and unsympathetic to let people suffer, particularly if breathless. They do, of course, prescribe for the symptoms but not the cause and they do not know symptoms in the first place.

Other countries might prescribe when the patients' TSH is around 3 but not the UK.

Eddie83 profile image
Eddie83 in reply toshaws

Is Big Brother watching over their shoulder? That is, if they treat someone whose TSH is 4.5, does the hammer come down?

stig5882 profile image
stig5882 in reply toEddie83

Eddie I think it is the NHS guidlines (not sure) :/

helvella profile image
helvellaAdministrator in reply tostig5882

Some of the guidelines that are often quoted are not as such NHS documents - but put out by British Thyroid Association, Royal College of Physicians, Society for Endocrinology, etc.

There are some guidelines which have now ended up under NICE but were originally Clinical Knowledge Summaries.

Doctors can lose so much if they do get clobbered (e.g. taken to the GMC) that they are bound to avoid doing anything that risks it. A single slight transgression is probably never going to get noticed. But if anything they do is investigated, then potentially every such transgression will add to the "evidence" against them.

shaws profile image
shawsAdministrator in reply toEddie83

Maybe their wages are docked!

The fact is that Doctors used to be trained in clinical symptoms only and prescribed accordingly NDT even on a trial basis because the hormones wouldn't hurt you.

Dr Skinner and Dr Peatfield were hounded because they did as they were taught as students but it's all blood tests and no symptoms.

Dr S was called before the GMC 7 times and a friend calculated that the odds were 10,000,000 to one re his appearances. No wonder he died of a stroke not too long after the last one. This makes interesting reading and it was not the patients of Dr S who complained but the Authority who he tried to persuade they were wrong by only relying on the blood tests.

worldthyroidregister.com/Le...

Eddie83 profile image
Eddie83 in reply toshaws

I'm sure the NHS knows damn well that doing this will drive patients who have financial resources, to concierge doctors. Thus, the NHS will shed patients and financial liability. Too bad there is no way to call them on the carpet for practicing economic discrimination. BTW, where does The Queen get her health-care?

shaws profile image
shawsAdministrator in reply toEddie83

She has her own Private Physician.

The fact is that if thyroid patients who remain undiagnosed or undertreated may well develop other more serious illnesses that will cost much more as well as ruin lives.

shaws profile image
shawsAdministrator in reply tostig5882

It is scandalous really, to ignore suffering and I believe a person with a healthy thyroid has a TSH of around 1 but at nearly 5 with symptoms you were ignored.

Start on the right foot with your next appointment. Say you are so pleased with your new blood tests because 'as I was denied treatment I have self-medicated with T3 and my 'clinical' symptoms have improved enormously I'm happy to say'. I would love to see her expression.

As they say, the proof of the pudding is in the eating and your TSH has come down and your symptoms improving.

Great.

stig5882 profile image
stig5882 in reply toshaws

Thanks for that, I will give that a try and let you know how she replies. :) lol xx

shaws profile image
shawsAdministrator in reply tostig5882

Dr Skinner before his death had been trying for years to knock some sense into the stupid guidelines as he was picking up the remnants of non-diagnosed patients who were going to him.

worldthyroidregister.com/Le...

Spareribs profile image
Spareribs

My old GP (retired) ran through some questions with me a long time ago (before I knew what he was on about - 'twas Thyroid).

"Have you put on weight and do feel you want to cry"

funny I'd forgotten about that, until I saw your post...

My (unrelated) Auntie couldn't stop crying too... very upsetting...

I hope you'll feel better when the treatment is right for you.

P.S. I try to avoid 'emotional' stuff, especially cartoons .... J :D

(impossible with 2½ year old granddaughter living here at the mo - pumba!)

stig5882 profile image
stig5882 in reply toSpareribs

LOL....I have just spent a week visiting my two grandchildren in N.Ireland (Molly 9 yrs old & Colton 4 yrs old) and I know how impossible it is to avoid emotions.... I had to explain to my daughter why I MUST go to the local shop when the kids were leaving for school my last day there. I couldn't bare to say goodbye and let them see me in such a state.. :( Wish I had your old doctor for my GP. :)

Grandkids are wonderful, enjoy!.... :)

gabkad profile image
gabkad

I'ts okay. I cry all the time. Well, not often in public but when I listen to some of the terrible things that go on in this world, I cry. If you don't cry because what all is going on, then there's something not right as far as I'm concerned.

stig5882 profile image
stig5882 in reply togabkad

I agree gabkad the world is in a terrible state and man seems to be capable of such cruelty. :( When I say "I cry" I mean I often can't control when it happens and I often avoid people because I can't seem to discuss anything remotely sad without crying and I can't hold back most of the time.... :/ Passersby look at me as if I'm mad....

gabkad profile image
gabkad in reply tostig5882

Well, you see, this is why driving a car helps......... I've been bawling in my car. Can't really do that on the bus. But at least I am not listening to the radio on the bus either.

I think we need to be a bit stronger inside of ourselves and probably when your thyroid meds are correctly titrated, you'll be more resilient. I hope the best for you.

Enaj-star profile image
Enaj-star

Hi Stig,

I've been the same way recently; literally crying at nothing without even feeling particularly sad. It's very unusual for me and totally out of character. I'm undergoing a trial on Levo at the moment which has made a big difference but my levels aren't yet under control. One day I'm fine emotionally and the next day not.

I hope you get your levels sorted; it should make the world of difference.

stig5882 profile image
stig5882 in reply toEnaj-star

Thanks for your reply, I am the same, even though I don't feel remotely sad I still cry at everything... :/ I have telephone appointment with doc this Friday but she already said she will not treat as TSH levels need to be around 10 and mine are only 5.2 :/

greygoose profile image
greygoose

It is a known symptom of low thyroid. I used to cry at the drop of the hat for things that really didn't require it! It was uncontrolable. People thought I was odd. Well, I was odd because I didn't have a fully working thyroid. But nobody knew that.

It's better now. I can control it in public. But I still tear up easily in private. And, as the others said, there is a lot to cry about.

teacherspet profile image
teacherspet

I cry mostly when I don't want to, so you are not alone. I find there are times when I'm depressed and feel like a good cry and the tears just won't come. However anything sad makes me cry (it's more like very watery eyes as there's no sobbing) - sad news, film, tv ad, even sad sounding music and the tears will flow.

It hasn't improved and supposedly I'm well medicated, HA!!!!!! but that's another story. I don't worry about it now as most of my family have always known me as the emotional one and as for everyone else, they seem to think it's allergies unless they are just being polite.

I wish it would stop, but then again it's not the worst thing to suffer from, just d*mmed inconvenient.

stig5882 profile image
stig5882 in reply toteacherspet

I choke up, sob, buckets of tears.... family now call me Tiny Tears...lol

Brubru profile image
Brubru

The good part of being in this forum is knowing we are not alone. I'm in a particularly crying time at the moment it comes and goes. Crying now while I write. I think I haven't yet found my dose. Some tweaking but seems we always need watching and changing and adapting and it can prove quite tiring. Be gentle with yourself and breath. Hope it improves soon.

stig5882 profile image
stig5882 in reply toBrubru

Brubru, thank you :) I feel you are on the same level as I regards the crying, I cry at the thought of someone suffering even if it is a stranger...lol My problem is my doc won't give me Levo or any meds because my TSH level is around 5 mu/L and she won't treat until the level is nearer 10 mu/L :(

Take care and hope you get relief soon. x

Brubru profile image
Brubru in reply tostig5882

Yes. I'm self treating with support from this site. I was left to live a half life with Levo. Much better now on NDT but the crying is one of the symptoms that hasn't gone yet. Just keep trying one day at a time.

stig5882 profile image
stig5882 in reply toBrubru

Thank you and blessings. x

Turkish profile image
Turkish

Hi Stig. I am exactly the same at the moment. Everything makes me cry. The doctor has just upped my thyroxine so I am hoping that will help. Hang in there x

stig5882 profile image
stig5882 in reply toTurkish

Thank you for replying and I hope you have joy with your medications. xx

knackersyard profile image
knackersyard

As you're being well advised on the Thyroid (which it most probably is), I'll throw in another possibility... Estrogen.

I'm not well versed on how Estrogen dominance effects laydees, but I know when body builders use steroids & too much is converted to Estrogen, they get emotional. They use stuff like Arimidex to inhibit conversion & sometimes stronger substances to kill Estrogen.

I know my wife has to take Tamoxifen to keep her Estrogen down, following breast cancer.

Obviously don't want to scare you. Just worth looking at all possibilities.

stig5882 profile image
stig5882 in reply toknackersyard

Thank you for your reply Knackersyard (lol...I'll be there soon) ;) lol

I will ask doctor about this as I am willing to try anything to stop this gurning..... I know I am not depressed as I look forward to each new day...as long as I don't have to feel so emotional :/

knackersyard profile image
knackersyard in reply tostig5882

Good on you. I remember when the GP was telling me I was depressed & trying to pedal that crap, I said yes I do feel depressed, but I know there's a physical cause. If I hadn't fought & insisted on doing tests I wouldn't have found Sleep Apnea & deficiencies in B12, Testosterone, Zinc, D3, Calcium, Phosphate & Hashimotos Hypothyroidism. They should have just put me down really 😆. Antidepressants would have solved nothing & added one to the benefits list. That just wasn't an option for me, I've got kids to support. I'm feeling 4000% better than I was 5 years ago & have just had my Thyroxine upped, so it could even get better.

Keep an open mind. Explore every option. Good luck!!!

Eddie83 profile image
Eddie83

Yes, hypothyroidism can cause heightened emotional response, including crying. In my case, a couple years of heightened emotions ended with a terrifying panic/anxiety attack. That is, had I known anything about hypoT when this occurred, I could have known that panic would eventually follow. So have you started thyroid hormone therapy yet? Don't wait too long!

stig5882 profile image
stig5882 in reply toEddie83

Thanks for replying , much appreciated Eddie :) I have been self medicating with T3 only this last 4 weeks as my doctor refused treatment as my TSH level was 5.2 mu/L and she said it has to be closer to 10 mu/L before she will treat. :(

stig5882 profile image
stig5882 in reply tostig5882

also I had my first ever panic attack a year ago. I did not know that hypoT causes panic attacks :/ since that panic attack last year I have been feeling increasingly breathless and can feel a pulsing in my chest/ neck.

thyr01d profile image
thyr01d

Dear Stig5882. Very sorry to hear this, in the months before I was diagnosed I cried at everything yet through the tears could relate that my life was great and even laugh, I didn't understand it at all. Much better in that respect since taking Levothyroxine, though it took a while to improve. Hope the same holds true for you.

It may not be connected but I've started reading the article Spare Rib posted: Hypothyroidism Presenting as Psychosis: Myxedema Madness Revisited

ncbi.nlm.nih.gov/pmc/ar...

Original 1949 version (with pics) not changed much...

ncbi.nlm.nih.gov/pmc/ar...

which linked to low magnesium (could have and labile emotions. Might be worth taking a look if you could be low in magnesium.

stig5882 profile image
stig5882 in reply tothyr01d

Thanks I shall have a read at that and I have just started a high dose magnesium. :)

thyr01d profile image
thyr01d in reply tostig5882

Best of luck stig 5882, I'm just about to try magnesium too.

mado profile image
mado

Last time I felt really weapy was when my levo needed upping. I am not as weepy as I was but still do cry over little things and I hardly ever cried before. Good luck sorting that love

stig5882 profile image
stig5882 in reply tomado

Thank you Mado for replying, I will keep fighting to get the right treatment. x

mmatrina profile image
mmatrina

Hi Stig, I am sorry to hear how you are suffering. But be reassured - I can testify that crying is a symptom of hypothyroidism.

I am hypothyroid and also suffered from crying before I was diagnosed, and afterwards when I was on T4 only. I am now on T3/T4 combination and this has given me back my life. T3 has a short half life, and consequently it is generally prescribed to be taken at least twice daily. If I forget to take one of my doses I very quickly feel the effect. It usually takes less than a day - sometimes only a few hours. And the first symptoms are crying and being emotionally over-sensitive.

I soon realised that this always happens. Now, when I am crying as you describe, either my partner asks if I have forgotten my T3 or I eventually realise myself that I need to take it. And within hours all those horrible feelings go away completely.

So no - you are not daft, raving mad or a freak. You are unwell and not being treated properly by the medical profession.

I hope this helps a little.

stig5882 profile image
stig5882 in reply tommatrina

Thank you so much for your reply. I am at the minute self medicating with T3 25mcg in morning and another 25mcg at night. My doctor refuses to treat me with T4 as she said my TSH level is not high enough to treat. My TSH was 5.9 before I started self medication and she my level needs to be around 10 befor she will treat. :/ Also my weight has ballooned by over a stone in 6 months. :(

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