Feeling totally lost and looking for advice....I had a total thyroidectomy in May this year, post op told it was hashimotos....thyroid sent for testing, post op appointment results not back and told they had sent it on for further examination to The Royal Marsden cancer hospital and to come back in a couple of weeks and the results should be available.....next appointment still no results and told not to worry.....if it was anything nasty they would know by now, I rang The Marsden and left voicemail but no one got back to me so I left it a while and rang again this was end of August and I had another appointment booked for 7th September.......finally got through to ?The Marsden who informed me they sent the results back to the hospital I was attending on 1st July!!!......well I though they keep saying if it was anything nasty they would have told me by now so have been fairly relaxed about it.....anyway turned up on the 7th only to be greeted by a registrar who sat back in his chair and asked why I was there??!!!! I was taken aback by this statement.....thought they read the notes before seeing a patient?? Obviously not!! So I said I'm here for the results which I have been told were sent here on the 1st July.....he looked at his computer then scuttled off for ten minutes came back and said....it's bad news......at that point my heart flipped, then he continued to say it's bad news we haven't got the results....make an appointment in 2 weeks and ring a few days in advance to check we have them.....so I did, I rang the Thursday before the appointment and was told sorry we don't have the results......well I just saw red.....rang the complaints department and told them my situation.....had to leave this message on voicemail and asked if someone could ring me back.....giving them my mobile number and saying it's my work mobile please leave me a message if I can't pick up, and I will just let you know my job is an NHS Complaints Advocate.....well this message was left at 4.50pm and by the next day at 08.54am I received a call from the complaints department informing me they had resent the results and the hospital would ring to confirm they had received them.....shortly after the hospital rang me to say they had the results by fax and they would be available for my appointment on the 21st September......so on the Monday off I went relaxed with the thought that everyone had kept saying it will be fine if they had found anything I'd know by now.....so in I go....sat down with my surgeon who announced it was not good news I have early stage lymphoma.....so in fact I've gone nearly 3 months undiagnosed yet with a confirmed diagnosis of lymphoma......I am so angry!!! I feel let down not by any person but by the system, the way in which results are transfers from hospital to hospital......and lost!!.....anyone have any idea what treatment maybe offered to me?? Any advice is very welcome.
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