T3: I am sorry to write again but need advice I... - Thyroid UK

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Pig4u profile image
14 Replies

I am sorry to write again but need advice I have taken10mcg .T3this morning at 7 am and 2 hours later I have irregular pulse this is often occurring along with the hot flushes and general fatigue Am wondering whether I should not continue with this treatment? .I find the heart thing very alarming especially as I live on my own.

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Pig4u profile image
Pig4u
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14 Replies

Hello pig4u... how do you feel after 2 hours of taking the 10mcg? And when you mean irregular pulse, do you mean palpitations, or racing heart?

Pig4u profile image
Pig4u in reply to

Hello Nikki 365 I suppose it is palpitations as I become very aware of my heart beat and whereas my pulse is usually steady and generally 72 beats a min. It is irregular I have sometimes had a racing heart . I become very tense when these things occur and I expect that makes things worse!I had a 6 day heart monitor in Feb and nothing came of that perhaps as my body gets used to theT3 things will settle down? Anyone else had similar feelings with T3 ?

in reply to Pig4u

I do find when I'm under medicated, my heart palpitations get worse, that in turns gets worrying, I did try splitting the dose myself, but made me feel worse, now I take mine all at one go, and I feel a lot better.

bossbird profile image
bossbird in reply to

How much do you take and what time of day

Clutter profile image
Clutter in reply to Pig4u

Pig4u, it's fairly common for pulse and heart rate to increase within a couple of hours of taking T3. They generaly subside within another hour or two. You might try splittling the 10mcg into 2 x 5mcg doses 6-8 hours apart.

imagisal profile image
imagisal

Yes, I get the rapid pulse on T3 but usually 4-5 hours after taking it and seemingly when it is wearing off and I need more. I tried for quite a few weeks to see if timing/dosing changes would work but still felt too wired at times so am giving Thyroid S NDT a go as some say it is a more gentle way to get the T3

shaws profile image
shawsAdministrator

Are you only taking 10mcg T3 and no levothyroxine?

Pig4u profile image
Pig4u in reply to shaws

No Shaws I am taking 30mcg T3 and am supposed to have gone from 20 to 40 Mcg instantly after seeing Endo last week .Made me feel really ill So I am trying to increase it gradually I Am on T3 only as after 8 years of being pretty poorly it has been established that I cannot tolerate Thyroxine .My next Endo appointment is at the beginning of December so hopefully I will manage to take the gull40 mcg of the T 3.!' At present I am trying 30mcg daily 9Many drugs affect the thyroid, so anyone being treated for a chronic disease, taking thyroid medication, and those at risk for a thyroid disorder should discuss the impact these drugs may have on their thyroid.

shaws profile image
shawsAdministrator in reply to Pig4u

I take T3 only and I am well now, so I hope you have a similar response.

They cannot tell us for sure what dose will suit us, so it is best to go slowly. We are apt to take a little too much initially, but if you go by how you feel that's the best way. Blood tests are only for a guide although I doubt many Endos are aware of it.

It would be great if they could say you only need this amount but they cannot. Some do keep us within a range which is also wrong. We have to have sufficient to make us feel normal health again with relief of symptoms. I have achieved that thankfully. I had a few ups/downs on the way but have now settled on a dose. An excerpt from the link below:

The problem is that for individual patients, we don’t know that ratio. These endocrinologists fail to realize that statistical inferences from large groups of patients do not tell us specifically enough what we need to know clinically about individual patients.

Because the pituitary is far more sensitive than other tissues to thyroid hormone—and just how much more sensitive in individual patients, we do not know!—we can’t reliably deduce the effects of a particular dose of thyroid hormone on most body cells from the effect of that dose on the pituitary thyrotroph cells.

web.archive.org/web/2010103...

Pig4u profile image
Pig4u in reply to shaws

Thank you Shaws I will go slowly on the T3 and aim for 40 Mcg a day by the beginning of Dec . When I go to See my Endo

shaws profile image
shawsAdministrator in reply to Pig4u

Best wishes for success. I found when that I reduced my dose by 1/4 and that did the trick but everyone is different.

thyr01d profile image
thyr01d

I had similar symptoms when on too much levo, with a very noticeable sudden drop into weakness immediately before the hot flush. Better with reduced dose. Like you I live alone and after the first few heart 'things' I decided I'd survived them so would be okay in future and stopped worrying.

On too little my heart beat feels too fast and strong, you can't help being aware of it. On too much the heart feels as if it is missing the occasional beat and then going into 'rapid fire'.

Hope that's some help.

Pig4u profile image
Pig4u in reply to thyr01d

Thanks so much thyr01d Iam much the same and your description of of the "lost " beat and then then the "rapid" fire sums it up! You have helped to put my mind at rest and in future I shall try to ignore .Now I have to get on with trying to work out if my new treatment on T3 only will sort me out!

thyr01d profile image
thyr01d in reply to Pig4u

Hi Pig4u and thanks for your reply.

Sorry if I misled you into thinking just ignoring is the answer. I meant the last two sentences to be a guide.

The heartbeat guides me and my lovely new GP. On too little Levothyroxine (just noticed I wrote it wrong last time) the beat is too strong to ignore but slow not fast, slow and heavy feeling.

On too much Levothyroxine it does that 'lost' beat thing, but that's not good and not a thing to ignore. On too much Levo I ended up with symptoms of hypo- and hyper-thyroidism, you want to make sure you avoid that.

Hope this is more helpful!

Best of luck on your journey to recovery.

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