So I've gradually raised my Levo dosage to 62.5 mcg's over 5 months as I have a terrible time raising. Mostly psychological disturbances.
Tried to raise to the full 75mcgs as agreed by GP and had the most terrifying reaction. Total psychosis. My husband just sat with me all through the night till it passed.
My last bloods showed
Ft4 18. (12-22)
FT3. 4.4. (3.1-6.8)
Over the years I have TRIED so hard to make this work. The only relief I've ever had was taking ERFA THYROID a few years ago but even then I could only raise properly when taking an SSRI with it. My Endo at the time said that was because the SSRI increases conversion. ( I know this to be true). When I stopped taking the SSRI my FT3 plummeted but I couldn't raise the NDT because the T4 component just made it impossible. Felt poisoned.
I am desperate.
I just don't think that I can convert T4. A tiny bit yes. But not enough to exist on.
What am I to do? I feel utterly helpless and desperate.
Is there a test that I can have done which the doctors will recognise officially as proof that there is a conversion problem.
I have had to lower my dosage back down to 50 mcgs of LEVO to get rid of the build up of T4 but now my mood has lowered, my sleep apnea is back, my baby seizures have returned when I sneeze.
I just want a doctor to listen to me and help me.
If I went back back onto an SSRI then maybe the levo would work better because it would help convert?
Am I a candidate for T3 only therapy.
I am sobbing as I write this because I feel so utterly lost and abandoned by the doctors..
I tried arnour but it gave me terrible heart irregularities
A few years ago an endo put me on T3 only but only 10mcgs a day and I was horribly underdosed and the sleep apnea was dreadful. He was reluctant to raise it because he didn't have enough experience prescribing it.
Please tell me there is hope.