Hi all, if it wasn't for finding this site in recent years I would not be armed with the knowledge that I need to keep well.
Last year during a health crisis being suddenly hospitalised, the consulting physician reduced my thyroxine from 100 mcg to 75mcg. I never really felt well enough on 75 (I post on the lupus site too so I don't ever really know which condition is responsible for which symptoms) but went with the flow as usual and didn't argue with the consultant as he was trying to give me advice about my general health management and trating the bigger picture (blood pressure etc).
The senior GP agreed to testing my thyroid function in January this year (the lab would not do T4 or T3)and it came back as 1.0 (0.30 – 5.50) so he would not even consider raising my thyroxine back to 100mcg.
However, my regular GP at my surgery who I see for all my other autoimmune conditions and the one managing my endoscopy and raised liver enzymes allowed my to raise my thyroxine as a trial back to 100mcg 7 weeks ago on the proviso I was retested again within 4-6 weeks. I FELT A VAST IMPROVEMENT and booked in for a retest 10 days ago.
I took the advice on this site and only drank water on the morning of the test (could only book in at 8.40 am) (I have never gone without my thyroxine ever before....I never knew you were supposed to do this) and therefore had not had thyroxine for about 27 hours....so I was looking forward to an accurate picture of my thyroid function on the raised dosage.
Imagine my shock when the doctor said my TSH came back at less than 0.1 (0.30 – 5.50) and the lab had flagged this up as hyperthyroid and therefore over medicated. My T4 was 20.1 (11.5 – 22.7) and as a result they had not done T3!
Kindly, she said she is not alarmist as she knows I am sensible and in no way would jeopardise my health and is willing for me to carry on with 100mcg for another month.
My joint pains have decreased (a little) but my energy levels have improved, to the point I have wanted to get some exercise. I have felt less depressed and my hands are less puffy and swollen though my liver enzymes are raised.
Have I done something wrong? I know the advice is to take bloods as early as possible before any thyroxine but maybe I should have done what I normally do and take it whenever the surgery can fit me in, after all that's what I have always done and I am comparing myself with my own results?