I don't post very often but i'm always reading the posts for information. I am on 125mg Levothyroxine - but have always struggled with severe muscle and joint pain and was diagnosed with Fibromyalgia about 8/9 yrs ago. Just recently this has got much worse and now involves burning sensations in my feet and lower legs and sometimes my hands and lower arms. I always have pain in most of body but now my neck shoulders and back of my head are painful too. I was diagnosed with asthma last year and also have sleep apnea & noctural seizures (but none since January fortunately!). Had a replacement hip last October and still having to hobble on sticks for any distance too.
What a complete disaster I am!
I have seen several GP's at the surgery ove the last couple of months who say my BP is good -my chest is clear - it is just an unexplained problem or Fibro! I have seen every consultant there is to see over the years - even a Pain Management doctor - but all I get is another lot of painkillers - which incidentally do not help and just mask the symptoms!
I saw the GP on Friday and she said my thryoid was low so to increase levo to 150mg alternate days which I have done since then. I did forget to ask for the print out - but I will get on Friday when I am going yet again! I did ask to try some T3 but she said to try this out first.
The pains are unbearable sometimes and after sleep I feel worse than I did when I went to bed. I also very often have to sleep in the daytime for 2/3 hours as I feel so dreadful and exhausted. I have had this before but now the pain in my back and everywhere else is a lot worse. They keep coming back saying its probably my fibromyalgia and I'm supposed to be seeing a specialist nurse who deals with this but in the meantime I'm trying to live!!!!
Anyway to get to the point I am seriously thinking of trying Natural Thyroid as I am sure that I'm either not tolerating levothyroxine or its not converting as whatever I do i cannot lose weight despite being on a Why Weight programme through NHS and seeing a dietician and having an exercise programme which I attend but spend the rest of the week feeling awful.
I really have to push myself to do things everyday and even walking around the house is agony! And they have the cheek to say "Hows your mood?""!!!!!! What do they really think!!!! Here take some amtripitiline ! No thanks been down that road.
My question is How /Where do I buy Natural Thyroid - which is the best to take ?? as I see so many posts on here about several different types and I am totally confused.
So sorry for the long long blog but I had to get that off my chest !
I will post my results when I get the print out asap.
Thanks for reading
Yours in agony