I’m looking for some advice on a new thyroid issue – I’ll try and summarise, but please let me know if you need more info.
Back in Oct 2014, blood tests before an operation for severe endometriosis showed slightly elevated TSH (5.78 and 8 on two respective tests). My consultant, who knew we were trying for a baby and needed IVF put me on 100mcg of thyroxine. The resulted in me losing a lot of weight very quickly and becoming overactive (TSH suppressed, FT4 =33.5). The consultant dropped my dose to 50mcg (TSH suppressed, FT4 =28.3) and then took me off thyroxine completely and whilst my TSH remain suppressed, my FT4 came into range (22.8).
As my results were in range, I undertook a round of IVF which was not successful, but lead to a high quality embryo being frozen. My IVF consultant is keen for me to use this frozen embryo, but my latest blood test showed a massive spike in TSH (>100) and my FT4 dropped to 3.0 – at this point I had been off the thyroxine for around 6 weeks. I had been feeling unwell, but thought this was due to the physical and emotional impact of IVF.
I have been put back on 50mcg of thyroxine, and have started to feel better.
My thyroid consultant (very experienced private London consultant) seems at a bit of a loss as to what is going on, describing my symptoms as unusual. He believes that my body is causing the swings from under to over active, hence why he is struggling to control the issue with drugs. He has previously said that my endometriosis (an immune issue) is not linked to my thyroid issue and really it’s just a waiting game. He hasn’t responded to my questions about Hashimoto's or whether I need a thyroid immunity test.
I’d be very grateful if someone can give me their thoughts on what is going on, and whether you think it would be worth getting a second opinion. For background, I’m 33 and until my fertility tests had not shown any adverse effects from either the thyroid or endometriosis. I work in London, and am willing to throw some money at this problem to help get to the bottom of it!