Hello I'm new to thyroid website but not new to being ill. I would greatly appreciate some advice. I've been ill 16 years. I was diagnosed first with m.e. then had graves disease in 2003 which was treated with block and replacement. after 4years of being house bound and not being aable to walk this gave me my life back and within a year was walking regularly and feeling more like myself. However its been a graual slide ever since coming off thyroxine over the past ten years. I was ok enough but not as well and even though I saw and endocrinologist and explained i didn't feel fully well, because my bloods were "normal" he claimed me cured. To be fair I wasn't too bad but was aiming to be wel.like many I've been up and down but completely crashed in 2013 and since I've basically felt like I was going back to square one. This is as you can imagine a v scary prospect after so many years. I believe my cfs m.e diagnosis is undiagnosed thyroid disease especially as thyroid runs in the family and I had graves disease. I have all the symptoms cold tired etc... I have a new consultant I met him in Dec 2014 when I was getting worse again and he put me on fludrocortisone for my adrenals and the contraception pill as he felt my hormones were all up the low..I did well on this for approx 8 months but in last 6 months getting v v v tired and cold and symptoms getting worse. I've finally got another appointment and want to persuade him that I need thyroxin or similar.
There is so much info now around some conflicting and I'm confused as to where yo really go from here. What should I be doing to try and assess what's happening as I can't rely on my bloods. My basal temp is low iron has been checked its low but supplemental iron hasn't raised it over the years. any advice would really be so appreciated I feel I have to somehow get my health back but feel I'm on a merry go round which I want to get off by getting better. Help! Thanks Katherine