I've been taking Cynomel(Cytomel) T3 only for over two years now and my health has improved dramatically. But it has been a long difficult battle to get it in the first place and then to keep it.
Historically, like many people on here, my life wasn't worth living, it is easier to say that nothing worked than describe all the symptoms. I still think of them as my lost years.
After going on a strict diet and putting weight on I did the research and ordered T3 online. As my health improved I confessed to my GP and she agreed to prescribe it.
Last year she left suddenly and her replacement was both ignorant and arrogant. He altered my prescriptions for everything and I was completely destablilised for a while. Then I found a new DR, who is lovely but cautious, she insisted that I saw an endocrinologist if I wanted to keep the T3. My online research made depressing reading, TSH is the gold standard in France. Eventually I found one who did prescribe T3. To see him meant a long drive and an overnight stay. It was an expensive waste of money.
He was determined to find a problem and couldn't, his ensuing letter does state that he could find no evidence of any damage caused by my T3 habit, however this didn't stop him from listing all the terrible things that would befall me. During the appointment he actually said that if I had a stroke & ended up in a wheelchair "we will be able to give you whatever we want". He then changed my prescription, added T4 and drastically reduced my dosage. After 3 weeks I couldn't function and had gained 10 lbs. He also unnerved me and I kept worrying whether I was doing any damage because he was an expert after all.
My GP read his letter and insisted on sending me to see a cardiologist to find out exactly what damage I had done to my heart. I went to see her today and guess what? My heart is fine!! Really fine and she will be recommending that I carry on with the T3.
She asked me a lot about it and told me that a lot of her patients with horrible cardiac problems have hypothyroidism that is treated with T4, she said that they can't lose weight, have really high blood pressure and cholesterol and go on to develop more serious problems that are difficult to treat. By the end of my consultation, I had the impression that she was asking me about T3 because she was genuinely interested from a professional point of view.
So, my T3 supply is safe for the immediate future and I can relax. I have been really anxious about losing it.
I also take Vitamin D and B6, don't ever eat gluten, avoid sugar and generally eat healthily. As I have begun to feel better I have started walking and just moving more. My energy levels are a bit erratic still and my body temperature is still very low, so I think I could increase my dose a bit.
I am so relieved.
Just for reference, Cynomel/cytomel is made in France by Sanofi and costs about €3.50 per pack.
So, if you are still battling with Doctors, don't give up. My story is one of the many that adds up to a lot of evidence that the endos and other Drs are wrong.