So its been a while since i posted here as I've been pretty much carrying on with my life since a hemi in March 2014, followed by completion in May 2014. Diagnosis was encapsulated, non invasive Papilliary Thyroid Cancer.
I was started off on 150mcg of Thyroxine (always been Actavis) I took it religiously every evening just before falling asleep. After a couple of months I noticed an increased, but manageable background restlessness then, towards the end of last year, this seemed to start manifesting as anxiety upon waking. It was getting rather unsettling and really affecting my mornings so i switched to taking 150mcg in the morning instead to see if anything changed. Things actually got worse. Although i always fell asleep absolutely fine, I started waking up earlier and earlier and would immediately feel what felt like adrenaline surges coursing through my body. This left me with the most awful feelings of anxiety and panic.
I was sure this was a physiological reaction as by the afternoon / evenings the anxiety would have gone and I was back to feeling 'normal' again. I would then fall asleep absolutely fine but then it would repeat again the next morning.
To me, I intuitively felt that it was the Thyroxine. In my TFT's my T4 was always just over the range at about 22, but T3 (around 4.4) and TSH (around 0.1) were within range (I have to have suppressed TSH for the Thyca).
Anyway things got so bad I was unable to go to work as my mental health for a few hours every morning was way off any scale I've ever experienced. Don't get me wrong, I've had plenty of anxiety in my life but this was worse and psychologically inexplicable to me.
I dropped down to 125mcg and within a few days the morning anxiety lessened and a couple of weeks later, had disappeared.
I have now been on 125mcg (100 Actavis amd 25 Wockhardt) for about 6 weeks and my latest TFT's now show a T4 of 16 (in range) a t3 of 3.1 (just below range) and a TSH of 0.7. I am seeing my consultant this week to discuss things.
Anyway -The last few days I have started feeling mild anxiety again in the mornings. I honestly feel that the Thyroxine is upsetting another endocrine system in my body causing it to produce, I assume, elevated cortisol in the mornings. It's not worrisome just yet, but at the back of my mind I am wondering what on earth I am going to do if it gets as bad as it did 6 weeks ago. I'm feeling that my consultant may want me to increase my dosage a bit. I am happy to try 150mcg just a couple of days a week and see if that makes everyone happy.
I have also been taking various supplement, multi vitamins, B-complex, Vit D and C. Maybe not every day, but a few days a week when I remember!
I guess I wondered if anyone else had experienced this and if so, what helped them?