I have suffered with chronic fatigue syndrome for 16 years and fibromyalgia for 6. There are have been many ups and downs but I have tried to keep informed and to eat and drink healthily. My downfall is not relaxing sufficiently and putting everybody else first! Since developing the CFS sleep has been something I have had to work on as I would be tired in the mornings but not at night. However, I have managed to work most of the time since I've had CFS and recover after some major relapses.
Two years ago, after my sister was diagnosed with under active thyroid with a lot of the same symptoms as me, I looked into it and discovered Thyroid UK. I had often been tested for thyroid but only with a TSH test which was always within range. I asked for a T4 blood test and it was 12 (10-21). The GP said I was borderline and after discussing my family history (one sister with under active thyroid, one sister with the same as me and my father who had all the same symptoms as us but they were never recognised - he developed heart problems and Parkinson's in later life) she agreed to give me a trial of thyroxine. After six months on thyroxine (25mg then 50mg then 75mg) my T4 had gone up to 17 (10-22) and I was feeling much better. I was able to work again and enjoy some social time as well for the first time since developing CFS.
Unfortunately, in the past 6 months I have suffered a lot of stress as my daughter has been very ill and I have been doing far too much looking after her, working and moving house! Why do these things always come together! I have seemed to cope amazingly well but my sleep has gone haywire and I'm not able to get off to sleep, whatever I do, until at least 2am. I don't need to get up until 9 but I never feel I've had enough sleep and that feeling has got worse recently. In the evening I get more awake as the evening goes on and I crave sugary foods late in the evening when I have eaten well all day. I asked my GP for a cortisol blood test suspecting adrenal fatigue. The test showed a high level of cortisol 654 (170-535) which I don't understand. The GP has referred me to an endocrinologist.
A week ago I quite suddenly suffered a viral infection with high temperature, aching body, nausea and dizziness. For a week I have slept almost continually and although the symptoms have gone now I am struggling to do much physically. The GP has booked blood tests for Monday and I wondered if anyone could suggest anything in particular. I'm sure she will have put down full blood count and thyroid.
Thank you very much